Stories of Vision Loss

Stories of Vision Loss

A collection of voices who share how vision loss is just a piece of their story. Each episode is one person's story about how they navigate their experiences. Record an Audio Message! Join Supporter's Club - $5/month Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests

Episodes

Mary Tyler Moore Vision Initiative

June 6, 2025 • 23 mins
Mary Tyler Moore is a cherished figure in the hearts of many with her enduring joy for life.  She was a graceful and talented award-winning actress, producer, author, media executive, and advocate for diabetes research.  Her husband, Dr. Robert Levine, shares information about the Mary Tyler Moore Vision Initiative that was created in her honor along with some personal moments they shared.

https://www.marytylermoore.org

https://www.b...
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Debra - The Blind Kitchen

May 23, 2025 • 28 mins
Debra shares her vision for The Blind Kitchen after learning about RP at the age of 28 as a single mother of two small children.

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Website: The Blind Kitchen

YouTube: @theblindkitchen

Check out a list of our guests: www.storiesofvisionloss.com/guests

https://buymeacoffee.com/storiesofvisionloss

Become a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
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Steve - Blind Endeavors

May 9, 2025 • 37 mins
Veteran, Steve Baskis, shares his experience turning his focus to outdoor adventures after losing his vision while serving in the military.  He shares techniques for sailing, biathlon (skiing and shooting), climbing, and how to prepare for an adventure through gathering a good team.

Record an Audio Message!

www.stevebaskis.com

www.blindendeavors.org

Check out a list of our guests: www.storiesofvisionloss.com/guests

https://buymeacoffee....
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Qusay - Can You Open My Eyes?

April 4, 2025 • 25 mins
Qusay Salih Hussein Al-Mamari shares his memoir and story of becoming a refugee from Iraq to the USA after a suicide bomber took his vision and changed the course of his life as a teenager while playing a volleyball match in a stadium with his brothers.

Despite incredible challenges and physical trauma that resulted in more than 70 reconstructive surgeries, Qusay shares his story with unforgettable positivity, strength, humor, and c...
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Jeanne - Good Eye, Bad Eye

March 21, 2025 • 27 mins
Jeanne shares her story of healing her trauma through truth as we discuss her memoir Good Eye, Bad Eye. She has lived her life as a monocular since the age of two, and has worked as a journalist and psychotherapist.  Her insights into her personal healing journey are valuable for anyone.

Record an Audio Message!

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.c...
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Wayne - Deep Dive

March 7, 2025 • 21 mins
Wayne Tuttle "The Blind Guy" and Titanic historian, shares his experience adjusting to RP, reclaiming his enjoyment for scuba diving, and the difficult decision to stop driving while continuing to love his hobby of snowmobiling.

www.thatblindguy.ca

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!
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Up Close: with MJ Jefferson

February 21, 2025 • 10 mins
Introducing MJ Jefferson, Exectutive Producer and Creative Director of Stories of Vision Loss podcast.

Record an Audio Message!

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month
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Brianna - Birds of a Feather

February 7, 2025 • 16 mins
Brianna "Nana" Hnilo shares her love of birds and animals, and tells us about being born with Fraser Syndrome.  She also shares how she got into writing ghosts stories through her love of Braille.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!
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David - Vision and Justice

January 24, 2025 • 16 mins
Judge David S. Tatel shares his RP journey throughout a lifetime of accomplishments.  He served nearly 30 years on America's second highest court, the United States Court of Appeals for the D.C. Circuit, where many of our most crucial cases are resolved—or teed up for the Supreme Court.  His story of fighting for justice over many decades, with and without eyesight, is an inspiration to us all - and the book he wrote about it is a ...
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Happy New Year

December 27, 2024 • 1 min
Happy New Year!  

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

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Ashley - Static

December 6, 2024 • 42 mins
Ashley King shares her story of International travel, methanol poisoning, building her acting career, and producing a play with a companion podcast, Static: A Party Girl's Memoir.

Apple Podcast: Static - A Party Girl's Memoir
YouTube: Static

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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Prabath - Power of Heart

October 11, 2024 • 27 mins
Prabath Wickramanayake takes us through his RP journey growing up in Sri Lanka, going to school in New Zealand, and living in Australia.  He encourages everyone to get out and do the things they love.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!
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Sara - Blind Nomadness

August 30, 2024 • 35 mins
Sara shares her story of being a blind nomad traveling throughout the USA, her passion for astrology, reiki, and self improvement.


Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!
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Michael - Unstoppable Mindset

August 9, 2024 • 34 mins
Michael shares his experience growing up as a ham radio operator, studying physics at university, assisting with the development of Kurzweil's assistive tech devices, and escaping the twin towers on September 11th with his guide dog, Roselle.

Apple Podcast: Unstoppable Mindset

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/...
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Bonnie - Kiwi Convert

July 15, 2024 • 25 mins
Bonnie shares her experiences with guide dogs, moving to New Zealand, writing romance novels, and her love of horses, history, and culture.


Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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Sam - The Blind Life

May 10, 2024 • 37 mins
Sam shares his experience developing The Blind Life YouTube channel, podcast, TikTok and social media presence.  His family plays a central role in his life, and he gracefully walks the line between artist and techie as a cake decorator, comic book artist, and assitive technology trainer.

YouTube: The Blind Life by Sam Seavey

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.stories...
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Hoby - Heard and Empowered

April 26, 2024 • 45 mins
Hoby Wedler shares his experience building businesses as a successful entrepreneur in the Food & Beverage industry after earning his PhD in Chemistry.  He was born blind with microphthalmia, and developed his palate and love for cooking through growing up in a family who supported him through high expectations.  His curiosity and thirst for knowledge will hopefully pair well with your day and leave you feeling inspired.

Apple Po...
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Josh - The Dented Puck

March 29, 2024 • 41 mins
Josh Schneider from The Dented Puck (podcast and foundation) shares his story about losing his vision in his 30s, rediscovering ice hockey as a blind player, and building a foundation and team to promote the sport he loves.

Apple Podcast: The Dented Puck

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Me...
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Up Close with Hoby & Charlotte

March 25, 2024 • 12 mins
This episode features Hoby Wedler interviewing Charlotte about the podcast and how it came to be.
Send questions to storiesofvisionloss@gmail.com

Thank you for listening

Hoby's podcast: https://heardandempowered.org

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!
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Jerry - Love and The Haight

February 23, 2024 • 37 mins
Jerry shares his experience through decades of participating in positive change and mending his San Francisco community through the Vietnam War, saving housing from the clear cutting of the landscape to remodeling an Edwardian house, and being on the front row of watching technology grow and shift through time. He now mentors people through art and woodworking, and his walking tour business called Jose Can You See.

Stay connected a...
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