Stories of Vision Loss

A collection of voices who share how vision loss is just a piece of their story. Each episode is one person's story about how they navigate their experiences. Record an Audio Message! Join Supporter's Club - $5/month Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests

Episodes

Qusay's Passing (1988-2025)

August 1, 2025 • 27 mins

Today, we share the heartbreaking news of Qusay Hussein’s passing with heavy hearts and deep reverence for the extraordinary life he lived. Qusay was more than a guest on Stories of Vision Loss—he was a beacon of resilience, a storyteller whose wisdom transcended his blindness, and a man who carried himself with unwavering dignity.

Qusay’s legacy lives on in countless ways—through the Qusay Hussein Humanitarian Award at UT Austin’...

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Lisa - Celebrating the Nothing Moments

July 11, 2025 • 30 mins

Lisa is a Diabetes Care and Education Specialist passionate about helping others, which started with helping her mother with diabetes. She shares her experience developing diabetes, diabetic retinopathy, and strokes. She has a wealth of professional and personal experience with diabetes, and she hopes that sharing her experience will allow others not to feel so alone on their parallel journey.

Lisa.Golden@twc.texas.gov

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Nazanin - Without Labels, You're Just You

June 27, 2025 • 31 mins

Nazanin shares her journey as a research professor studying health disparities and equity in various populations (including diabetic retinopathy). She describes her visual experience as always legally blind, but not a label that defines her life. Though, it has helped make her an excellent problem solver! She talks about parenting and learning to ride a bicycle again as an adult.

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Check out a list of our gu...

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Mary Tyler Moore Vision Initiative

June 6, 2025 • 23 mins

Mary Tyler Moore is a cherished figure in the hearts of many with her enduring joy for life. She was a graceful and talented award-winning actress, producer, author, media executive, and advocate for diabetes research. Her husband, Dr. Robert Levine, shares information about the Mary Tyler Moore Vision Initiative that was created in her honor along with some personal moments they shared.

https://www.marytylermoore.org

https://www.b...

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Debra - The Blind Kitchen

May 23, 2025 • 28 mins

Debra shares her vision for The Blind Kitchen after learning about RP at the age of 28 as a single mother of two small children.

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Website: The Blind Kitchen

YouTube: @theblindkitchen

Check out a list of our guests: www.storiesofvisionloss.com/guests

https://buymeacoffee.com/storiesofvisionloss

Become a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.

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Steve - Blind Endeavors

May 9, 2025 • 37 mins

Veteran, Steve Baskis, shares his experience turning his focus to outdoor adventures after losing his vision while serving in the military. He shares techniques for sailing, biathlon (skiing and shooting), climbing, and how to prepare for an adventure through gathering a good team.

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www.stevebaskis.com

www.blindendeavors.org

Check out a list of our guests: www.storiesofvisionloss.com/guests

https://buymeacoffee....

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Qusay - Can You Open My Eyes?

April 4, 2025 • 25 mins

Qusay Salih Hussein Al-Mamari shares his memoir and story of becoming a refugee from Iraq to the USA after a suicide bomber took his vision and changed the course of his life as a teenager while playing a volleyball match in a stadium with his brothers.

Despite incredible challenges and physical trauma that resulted in more than 70 reconstructive surgeries, Qusay shares his story with unforgettable positivity, strength, humor, and c...

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Jeanne - Good Eye, Bad Eye

March 21, 2025 • 27 mins

Jeanne shares her story of healing her trauma through truth as we discuss her memoir Good Eye, Bad Eye. She has lived her life as a monocular since the age of two, and has worked as a journalist and psychotherapist. Her insights into her personal healing journey are valuable for anyone.

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Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.c...

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Wayne - Deep Dive

March 7, 2025 • 21 mins

Wayne Tuttle "The Blind Guy" and Titanic historian, shares his experience adjusting to RP, reclaiming his enjoyment for scuba diving, and the difficult decision to stop driving while continuing to love his hobby of snowmobiling.

www.thatblindguy.ca

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

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Up Close: with MJ Jefferson

February 21, 2025 • 10 mins

Introducing MJ Jefferson, Exectutive Producer and Creative Director of Stories of Vision Loss podcast.

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Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

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Brianna - Birds of a Feather

February 7, 2025 • 16 mins

Brianna "Nana" Hnilo shares her love of birds and animals, and tells us about being born with Fraser Syndrome. She also shares how she got into writing ghosts stories through her love of Braille.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

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David - Vision and Justice

January 24, 2025 • 16 mins

Judge David S. Tatel shares his RP journey throughout a lifetime of accomplishments. He served nearly 30 years on America's second highest court, the United States Court of Appeals for the D.C. Circuit, where many of our most crucial cases are resolved—or teed up for the Supreme Court. His story of fighting for justice over many decades, with and without eyesight, is an inspiration to us all - and the book he wrote about it is a ...

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Happy New Year

December 27, 2024 • 1 min

Happy New Year!

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

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Ashley - Static

December 6, 2024 • 42 mins

Ashley King shares her story of International travel, methanol poisoning, building her acting career, and producing a play with a companion podcast, Static: A Party Girl's Memoir.

Apple Podcast: Static - A Party Girl's Memoir
YouTube: Static

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

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Prabath - Power of Heart

October 11, 2024 • 27 mins

Prabath Wickramanayake takes us through his RP journey growing up in Sri Lanka, going to school in New Zealand, and living in Australia. He encourages everyone to get out and do the things they love.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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Sara - Blind Nomadness

August 30, 2024 • 35 mins

Sara shares her story of being a blind nomad traveling throughout the USA, her passion for astrology, reiki, and self improvement.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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Michael - Unstoppable Mindset

August 9, 2024 • 34 mins

Michael shares his experience growing up as a ham radio operator, studying physics at university, assisting with the development of Kurzweil's assistive tech devices, and escaping the twin towers on September 11th with his guide dog, Roselle.

Apple Podcast: Unstoppable Mindset

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/...

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Bonnie - Kiwi Convert

July 15, 2024 • 25 mins

Bonnie shares her experiences with guide dogs, moving to New Zealand, writing romance novels, and her love of horses, history, and culture.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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Sam - The Blind Life

May 10, 2024 • 37 mins

Sam shares his experience developing The Blind Life YouTube channel, podcast, TikTok and social media presence. His family plays a central role in his life, and he gracefully walks the line between artist and techie as a cake decorator, comic book artist, and assitive technology trainer.

YouTube: The Blind Life by Sam Seavey

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.stories...

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Hoby - Heard and Empowered

April 26, 2024 • 45 mins

Hoby Wedler shares his experience building businesses as a successful entrepreneur in the Food & Beverage industry after earning his PhD in Chemistry. He was born blind with microphthalmia, and developed his palate and love for cooking through growing up in a family who supported him through high expectations. His curiosity and thirst for knowledge will hopefully pair well with your day and leave you feeling inspired.

Apple Po...

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Stories of Vision Loss

Episodes

.css-14f5ked{margin:0;word-break:break-word;display:-webkit-box;-webkit-box-orient:vertical;box-orient:vertical;-webkit-line-clamp:2;overflow:hidden;}Qusay's Passing (1988-2025)

.css-r6mb8g{margin:0;word-break:break-word;display:-webkit-box;-webkit-box-orient:vertical;box-orient:vertical;-webkit-line-clamp:1;overflow:hidden;}Lisa - Celebrating the Nothing Moments

Nazanin - Without Labels, You're Just You

Mary Tyler Moore Vision Initiative

Debra - The Blind Kitchen

Steve - Blind Endeavors

Qusay - Can You Open My Eyes?

Jeanne - Good Eye, Bad Eye

Wayne - Deep Dive

Up Close: with MJ Jefferson

Brianna - Birds of a Feather

David - Vision and Justice

Happy New Year

Ashley - Static

Prabath - Power of Heart

Sara - Blind Nomadness

Michael - Unstoppable Mindset

Bonnie - Kiwi Convert

Sam - The Blind Life

Hoby - Heard and Empowered

Popular Podcasts

Qusay's Passing (1988-2025)

Lisa - Celebrating the Nothing Moments