RAWR The Podcast

We had a very special guest join us for this episode – our friend Lizzy, AKA @mumof2pinks, who is super vulnerable in sharing her experience of being a full-time carer to her daughter Georgia. Lizzy breaks down the walls – and the stigma – and shares some hard (but oh so relatable) truths about losing her identity, the constant fight in all areas of her life, and her struggle every day to wake up and do it all over again. There’s n...

We're back!!

Welcome to what we’re calling Season Two, cos it makes it sound like we totally planned the 6 week break and have this all under control!

But seriously, we are feeling FRESH and ready to keep fighting the good fight alongside our community of RAWR-ers. This week’s chat is just that – a RAWR Real Talk catch up between friends about everything that’s been happening over the past few weeks, including Riley’s upcoming PEG ...

Emma's BAAACK! RAWR's original co-host Emma came back for a 'no bullshit' check-in and to once again break the stigma surrounding some very important and poignant topics. We laughed, we cried and we didn't hold back talking about the anxiety and trauma of high-risk pregnancy after loss, as well as the lack of control and heartache we feel when things don't go the way we hoped. Emma talks about her struggles with societal expectatio...

This was SO much fun! In honour of the recent Feeding Tube Awareness Week (FTAW 2023), we wanted to squash the myths and misconceptions of tube feeding, and who else do you turn to other than the queens in this space?! We sat down with Melanie Dimmitt, author of The Blend, and Sarah Thomas, founder of Wholesome Blends, to share some of our own personal experiences and stories as mama's of children with a feeding tube, and let us ju...

Happy Feeding Tube Awareness Week!

In honour of FTAW, we invited the incredible powerhouse Sarah from Wholesome Blends onto the pod. Sarah is such a good time, she found a gap in the market as a consumer - she wanted and needed a product for her own tube fed child and couldn’t find – so she created it! We will let the expert herself tell you all about it during the episode, but in a nutshell, Wholesome Blends is real food for tubie...

We sat down with our eldest darlings, Adelyn and James, and asked them about the ups and downs of life as big siblings and how they feel about Riley and Jack's disabilities and medical needs. Basically a whole bunch of cuteness that the world needs to hear! Enjoy! 

And you heard our little legends - please leave us a review, give us 5 stars, and share us with your friends!

Mentioned in this episode: Rosalyn & Rae Alee Disability Su...

Introducing a VERY special guest to RAWR The Podcast, Tori Meskin aka Nurse Tori!

Tori is an absolute powerhouse, she is a registered nurse with 10 years experience specialising in neonatal and paediatric intensive care, as well as a blogger, content creator, keynote speaker AND podcaster. She is a natural born leader and a positive and inspiring role model who is passionate about presenting a fun and relatable side of the healthca...

This week we talk about advocating and fighting for your child (we've all been there), the many different factors that come into play, and how it's not always as simple and easy as it seems. Alongside our own experiences, we break down the six main 'negative' themes identified in the blog titled 'The how to advocate for your child one' by Penny from Sick Happens that parents have encountered when in hospital with their sick child. 

We invited Hayley from Alee Disability Support Services onto the pod to discuss all things NDIS - plan reviews, gaining access, therapist reports, providing evidence, support coordination, ‘parental responsibility’, and so much more! We also answer some of the most frequent listener questions in this space and provide recommendations for support. This episode is extremely informative. We hope it will help many of you who are naviga...

It's been a little hectic, so we've dropped another Life Update on Jack and Riley...from Jack's recent psychologist appointment to Riley's ENT surgery and extended hospital stay. We discuss the usual bits - sleep, poop, and emotions - as well as the heart-wrenching juggle of hospital and home life, and a brief sneak peek into NDIS leading into the next episode. We share your Mum Brain Moments and also introduce our new segment: 'RA...

We're back! It’s been a hot minute, so we’ve kept it very simple this week and just talked shit (at times literally) for the whole ep. Just your typical A & G life update, including: - The very real ups and downs of our recent family getaways – holidaying is just parenting in another place, right? - Riley update – ENT surgery and a well-deserved equipment grant! - Jack update – Therapies, progress, and sleep…should we bunk the bo...

This week we chat with Elle, a mama of 2 boys up in the sky and 1 boy here on earth, with another little guy on the way via surrogate. Ellie’s story is another difficult one, but is also filled with hope, acceptance and gratitude. We discuss the loss of Elle's boys Taj & Lenny at 20 and 21 weeks of pregnancy, her battle with unexplained infertility followed by multiple unsuccessful IVF attempts and an endometriosis diagnosis, a NIC...

In Part 2 of this ‘Real Talk’ episode we give a life update before jumping into how and why we downplay our OWN shit to protect ourselves and others. We then get vulnerable by exposing some of the darker complexities of medical anxiety, including the ways we worry when our child improves medically. We then have a LOL (with you, not at you!) as we share some of your very best medical mama fails. 

We hope you love it RAWR-ers!

Mentio...

In Part 1 of this ‘Real Talk’ episode we talk about toxic positivity, also known as bright-siding, also known as the opposite of what we need as parents of children with medical and special needs! This topic comes up every single week, so we think it deserves its very own episode. We break down how toxic positivity is displayed, how it downplays and invalidates the emotions of others, the damage it can cause, and how we can manage ...

Sophie is a hero in our eyes - and it's no surprise she has been publicly recognised as one. Her story and what she's created in response to her grief has already touched so many. In this episode, Sophie opens up about tragically losing her triplet sons and how she and her husband Ash founded the Australian registered charity Running for Premature Babies in their memory. She later went on to have two more sons before losing Ash to ...

We’re so excited to welcome Krysten @the_therapist_parent to the podcast! Krysten is a highly-skilled and knowledgeable child psychologist with over 20 years experience working with children and families. We really made the most of her knowledge and covered so much, including…

- Medical trauma - Can we be too lenient? - Sensory differences - Regulating emotions in both ourselves and our children - Why she doesn’t support rewards an...

In this week’s episode Amy & Grecian go back to the beginning and talk about how to best help and support a friend who has a baby in NICU, as well as what not to do/say and the best gifts you can give – we’re not lying when we say the best gift is ‘doing’ without being asked! We recall the memorable things that people did to support us personally, as well as some harder parts of the experience that we wish others could better under...