Chronic Chats
This podcast was created to make a safe space to talk about chronic disease and chronic illness I'll be sharing how it started for me, how I coped, how I advocated for myself, what I saw, what I learned, how I finally found answers, and what treatment has been like. But I also created this podcast to chat with others in and around this same world of chronic disease. I'll be chatting with other spoonies about their experiences, their journeys, their fight through the medical system and through a world that isn't very accessible for them; for us. As the podcast progresses, I'll be bringing on doctors, alliances, and organization heads to discuss things from their vantage point -- I want this to be a place where if you're sick, you feel heard, you feel seen, and you learnsome tricks on how to get through this. If you're not sick, but you have a friend or family member that is a part of this chronic club -- this is a space for you to better learn what they are going through, and how you can really make a difference for them. And if you're not sick and don't know anyone sick, this is a great place for you to learn empathy in a way you never have.
Episodes
In this podcast episode, the host invites her Instagram friend Mary to share her story of chronic illness, which began in middle school and has included a series of ailments such as insomnia, brain fog, anxiety, headaches, and migraines. Mary details her experiences from middle school through college, a traumatic car accident, mission work post-college, and the ongoing struggle with symptoms while battling Lyme disea...
In this episode, the host interviews Ashley, who shares her journey of dealing with chronic Lyme disease. Ashley discusses her initial symptoms in early 2020, including numbness and severe leg pain, which escalated over time. She talks about her eventual diagnosis, the challenges of finding the right medical treatment, and her mental health struggles. Ashley also highlights the impact of her illness on her personal li...
In this episode I share many of the stories, throughout the years, that I should have reported, bad and good. There are doctors that you'll never forget, who went way outside their purview to help you in ways most doctors today don't. And then there are the plethora of doctors you'll never forget, because of how deliberately and obscenely they treated you. Most chronically sick people have plenty of sto...
In this episode, I straddle the parallel worlds of those who are chronically sick, and those who are able-bodied and otherwise healthy people. I go through some very specific examples, and ultimately make the point that it is vital we respect, sympathize, empathize and make room at the table for those who aren't like us (whatever your life looks like).
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Trigger Warning: This episode covers the topic of unaliving. If this topic is a sensitive one for you, I suggest you skip this one. We'll see you back for episode 3 xoxo
In this episode, I share my experience inside a psych facility. It was a time I never thought I'd experience, and it was a lot. I learned a lot about people in my situation, I learned a lot about bipolar and schizophrenia,...
Season 2:Episode 1 .:. In this episode, I share with you the choices I've been given to reach remission from 24yrs of Lyme disease. There's something involving bees, there's another option involving IVs, and then there's just stopping to recognize that despite all of these barbaric choices I have to choose between, there is purpose; a story to tell.
It's been five months since my last chat on here! Four months longer than I anticipated. But I have since returned from San Diego, where I was trying some more advanced treatments for the Lyme disease I'm battling with. And I came back with a lot more than I left with.
Follow me on Instagram to get a more intimate look at my journey with all-things chronic illness
@chronic_but_capable
https://www.ins...
It's not shocking that chronic illness goes hand-in-hand with affective disorders like depression and anxiety. However, to be clear, I do not believe that depression causes chronic illness. And I do not believe that anyone should ever assume our symptoms to be "psychosomatic."
That's not what this is about.
This chat covers how chronic illness can cause depression. Not only because of the...
In this episode, Tiana covers a topic that needs to be discussed and educated on further as a society: service dog discrimination. She shares her experiences being denied housing, transportation and general access because she has a service dog. Further she discusses how you should act around a service dog, the do's and don'ts of approaching one, and how you should respond to one if you are a business owner. ...
Gaslighting, all by itself, is a dangerous practice. But medical gaslighting is on another level. If you've experienced this yourself, or not, you need to hear this episode. Tiana explores the topic and shares her experiences, and highlights the story of an 8yr old in Alabama who's going through it.
Follow me on Instagram to get a more intimate look at my journey with all-things chronic illness
@chronic_b...
This episode helps to lay some fundamental groundwork for the rest of the season. It's Tiana's medical journey from 2001-2021, in timeline fashion. She touches on medical gaslighting, misdiagnosis, and the emotional rollercoaster that occurs with anyone on a similar journey.
Follow me on Instagram to get a more intimate look at my journey with all-things chronic illness
@chronic_but_capable
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This is the beginning of only God knows what. It's a podcast that was asked for, repeatedly, so here we are. Chatting about all-things chronic. But before we dig into the goods, this first pilot episode is a mini episode; a get-to-know Tiana: the dating-app version.
Follow me on Instagram to get a more intimate look at my journey with all-things chronic illness
@chronic_but_capable
https://www.instagram.c...
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