Fantastic Pains and How We Hide Them
Join on us on our individual journeys living, coping, and laughing at our lives with Ehlers Danlos Syndrome or EDS. We intend to raise awareness about invisible Illnesses, commiserate with fellow chronic disease friends, and share our own coping strategies and advice we have accumulated on our respective journeys
Episodes
Obviously it's my hope that you guys will see and understand the Douglas Adams reference... it's kind of smacking ya'll in the face. ANYWAY! This episode features a more relaxed conversation centered around some of the more recent interests. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Jo...
The Context Matters -- In this episode we discuss a large variety of things and how it's led to and impacted other things. Our Podcast, for example, and how it came to be, the things in our past that have shaped decisions as well as the hiccups we would face along the way both intrapersonally all the way through medical and beyond. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fa...
Bipolar mania is not a straightforward 'connect the lines' sort of situation. This episode two of our lovelies discuss their bipolar situations and their different experiences under that framing. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https...
The journey of a diagnosis is not always a straightforward one. Sometimes we have a diagnosis that later, under a different medical lens, gets narrowed down to something else than what we anticipated. It's not cookie-cutter for how we're supposed to feel about a change in diagnosis let alone the emotions attached to the start of the journey with the new diagnosis and/or criteria. What are your thoughts on this subject? Feel free to...
Story time! Today's episode revolves around the trigeminal neuralgia-esque issue's our dear NotChris has been having for some time now. In addition to discussing the symptoms and the struggles of that, our focus is also brought the neglectful treatment and care she's been receiving. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patr...
A trauma-versary is the anniversary of a traumatic event, in our case traumatic medical events. We go into the talk about the event and the impact it's had in echoed-trauma on the anniversary of the traumatic event coming up. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding c...
Not all pain is identical but trying to get it treated can often be more difficult it can be to get any of that communicated to our doctors. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
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Sometimes with pain things are just.... that. Not everything is cookie-cutter when it comes to that or zebras on the whole. No two pains are exactly the same. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
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This week we of course have our check-in -- we also discuss the separation between our 'selves' and our 'bodies'. Not something most neurotypicals we've talked to have understood but zebras can understand! What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our disc...
We talk a lot about interacting with the non-chronic world. This episode we talk about the value of ourselves, and the self-talk struggles of the ill world. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
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Re-Re-Rearranged the set! This episode we go over the struggle with isolation that our illnesses cause... and the active struggle we go through with the people we don't see very often versus the ones that can actually understand our situation. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
...After missing a week we're still feeeeeeeeeling it. Join us for a Check-In Episode! What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
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chill. by sakura ...
AITA (Am I the A***hole?) -- Chronic Pain edition! We read AITA for invisible illness/chronic pain and discuss! Some of these i'm still feeling all riled up about! What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
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A 'baseline' in the way that it's our standard. What makes a baseline bad? We discuss the struggles with the topic, moving goalposts, and the unfortunate acceptance of pain being part of that unpredictable baseline. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community o...
We've talked bits about the struggle times -- when we're waiting on appointments, tests, pharmacy orders, prior auths, etc. Usually we're speaking in a more detached state, having just gone through a rough patch. This time, we're feeling it. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Jo...
...before you wreck yourself. In this episode we discuss our processes and steps for doing self-checks: Seeing how we're doing in the moment compared to what we need to do. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYS...
The hurt of the Holidays hit everyone in very different ways. While I don't think we covered all of them, we discuss the hurt that we've experienced so far this year. What are your thoughts on this subject? Feel free to chat with us below!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ
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Ft. Our brother Benji, in this episode we discuss where he's at with pain in the condition we all share and go through each of our own journeys of pain.
As always we are here to listen to your stories as well! Feel free to chat with us below or join our burgeoning community on discord!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsandHowWeHideThem
Fantastic Pains Merch: Teespri...
Unfortunately we do not have an episode this week! However, we felt we had to record this little snippet to express our thanks and love for you all! We passed another milestone in such a short amount of time and we owe it to each and every one of you in our little community. We never expected the comradarie and friendship running this podcast has cultivated and we wouldn't change it for the world.
Our Website: https://www.fantast...
Medical-related PTSD is the subject of today's discussion! Forwarding to anyone that missed the title or thumbnail because it's a sensitive topic. PTSD getting incited by medical things, such as Chris' septic episode, are not as uncommon in the world as one might think. Today's episode we discuss our experiences with this topic!
Our Website: https://www.fantasticpains.com/ Our PAIN-treon!
https://www.patreon.com/FantasticPainsan...
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