Raising Disabled
We're Deonna and Rhandyl and this is Raising Disabled where we openly talk about parenting our disabled kids and the challenges and triumphs that we've experienced along the way. If you are a parent of a disabled child or have wondered what it's actually like and want to make sure EVERYBODY BELONGS, you're in the right place. Please subscribe to Raising Disabled to have some fun with us as we discuss the extreme highs and lows that we and our guests have experienced firsthand living this different life that we love. Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast. Instagram - @raisingdisabledpodcast Facebook - Raising Disabled Podcast
Episodes
In this episode, we talked to Alex Dragich about raising her daughter Mattie. Mattie was diagnosed with a rare genetic syndrome called KAT6B.
To follow Alex and Mattie's journey, follow them HERE!
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.
Instagram - @raisingdisabledpodcast
Facebook - Raising Disabled Podcast
In this episode, we talk to Rob Gorski AKA The Autism Dad about his 3 autistic sons.
You can learn more about Rob, his mission to educate about autism, and his podcast at theautismdad.com
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.
Instagram - @raisingdisabledpodcast
Facebook - Raising Disabled Podcast
In this episode, we look back on 50 episodes of RAISING DISABLED and reflect on our favorite question that we always ask caregivers, "What is the best thing to come out raising your disabled child?" We share some of our favorite answers from our past episodes and then we talk about what our answer is to this question.
Please subscribe, leave a review, and follow us on social media to know about upcoming episo...
In this episode, we talk to Jillian about raising her kids, Roman and Stella who are battling a rare genetic condition called ASMD.
Follow Jillian on social media @confessionsofararediseasemama and subscribe to her podcast HERE.
Get a copy of her book "Soaring Together" inspired by her disabled children HERE.
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to p...
In this episode, we share Deonna's family's experience at Morgan’s Wonderland, the world’s first ultra-accessible theme park located in San Antonio, Texas.
Deonna shares:
- What makes Morgan’s Wonderland so special for families with disabilities,
- Accessibility highlights, from wheelchair-friendly rides to inclusive playgrounds,
- Our favorite attractions and sensory-friendly features,
- and tips for parents planning a v...
In this episode, we talked to Brittany Lagarde about raising her daughter Sawyer who has Sanfilippo syndrome and her son Zion who has autism.
Follow Brittany on Instagram @happylagardeless
Check out Brittany's husband Sam's book Zion the Lion HERE!
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.
Instagram - @raisingdis...
In this episode we talked with Allison Childress, Shannon Galyean, and Michelle Alcorn of 3 CulinaryMed Docs about their app My Partner Sam.
My Partner Sam is a culinary medicine app that creates customized medically tailored meal plans for people with chronic conditions, specifically for those who have multiple chronic conditions.
To learn more about their mission, visit their website to learn about how their app could bene...
In this episode Deonna, Rhandyl, and our listeners share over 45 "life hacks" or ways to make your life easier as a caregiver!
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.
Instagram - @raisingdisabledpodcast
Facebook - Raising Disabled Podcast
In this episode we talk to Abbey Luckett Benjamin from Louisiana about raising her daughter Avery.
We talk about her daughter's diagnosis of Adenylosuccinate Lyase Deficiency or ADSL, her seizures, living with a medically complex child in a rural area, Avery participating in dance classes, and how she finds joy in the midst of trials.
Follow her Instagram at @abbeybenj
In this episode, we share all of the superstitions from our listeners and ourselves surrounding the care of our disabled children.
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.
Instagram - @raisingdisabledpodcast
Facebook - Raising Disabled Podcast
In this episode, we share our goals for 2025 from us and our amazing listeners. We also share our goals for the Raising Disabled Podcast for this year and a few guests that we would love to have on the show very soon!
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.
Instagram - @raisingdisabledpodcast
Facebook - Raising Disa...
In this episode, Rhandyl and Deonna share about their holiday break, Stuff the Van with Allie and Cole, their daughter's favorite gifts, and what to expect in Season 3 of the podcast!
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.
Instagram - @raisingdisabledpodcast
Facebook - Raising Disabled Podcast
In this episode, us and our listeners share what we're most thankful for about raising our disabled children.
We share our drastic shifts in our priorities, our resilience as caregivers, and the unique perspectives our disabled kids bring into our lives.
We are taking a break from releasing new episodes until January 10, 2024 so we'll see you in 2025 for season 3 of the Raising Disabled podcas...
In this episode, we're talking about thoughtful, accessible Christmas gift ideas tailored for kids with disabilities. We share our favorites and share ideas from our listeners too!
Key Takeaways:
- When selecting gifts for disabled kids, prioritize their interests and abilities.
- Ask the parents or caregivers to ensure the gift is appropriate.
- Take basic everyday items and make them personal and fun.
- Think outside of the b...
In this episode, we learn about speech therapy methods with speech-language pathologist Kevin Simmons, the Singing SLP.
Specializing in working with children with disabilities, Kevin shares his unique approach that combines play-based therapy, music therapy, and interactive techniques to help children have a great speech therapy experience.
We talk about:
- Play-Based Speech Therapy: He shares about how incorporati...
In this episode we talk to Ruby about her daughter Lexi who has Arthrogryposis Multiplex Congenita (AMC), a rare condition affecting joint movement.
We talk about:
- the early days of the diagnosis and navigating early interventions,
- what her physical therapy and multiple surgeries have been like,
- her teaching her daughter how to advocate for herself,
- and the challenges and triumphs of parenting a child with AMC...
In this episode of Raising Disabled, we talk about one of the most frustrating questions parents of disabled children hear: "When will they be better?"
We discuss:
- why this question is harmful,
- how it reflects some of our society's misconceptions about disability,
- and the emotional toll it takes on families.
We hope to redefine what it means to live with and love a disabled child, emphasizin...
In this episode we tell parents of typical children:
- Why they should be having an intentional, continuous conversation with their kids about people with disabilities,
- What they should teach their children to do and say (and what not to do as well),
- and we shared opinions from our listeners and fellow caregivers about what they wish you were teaching your kids about their disabled child.
In this episode we share our feelings and the feelings of some of our listeners about their kids going back to school.
We talk about the perspectives of families:
- going to public school,
- using home services,
- and those who choose to home school.
Special thank you to the following for being willing to share their feelings on Back to School:
@estebana12345
In this episode of Raising Disabled we talk to Jessica Patay about:
raising her son Ryan,
her book and podcast We Are Brave Together,
and her caregiver retreats.
Learn more about Jessica and her projects at https://www.wearebravetogether.org/book
Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.
Instagram - @r...
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