The Grace, Grief and Grit Podcast
Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
Episodes
Producer Dee Daniels hosts a one-on-one Grace, Grief and Grit podcast episode with Anne Davis reflecting on grief nearly five years after the passing of her daughter Hallie Grace, who was born in 2021 and would turn five on June 5, 2026.
Anne describes how time feels distorted in grief and challenges the idea that “time heals all wounds,” explaining that life grows around grief but the absence can feel sharper as new milestones ...
Producer Dee Daniels hosts Grace, Grief and Grit with Heroes for Hallie Grace board members Randi Hempel-Adams - Co-Owner of Coastal Pickleball, Cindy Brown - Co-Owner All About You Entertainment, and Derek Llamas - Owner of Coastal Strategy Group to discuss their connections to Hallie Grace and the rest of the family, personal experiences with loss, and the mission to support families affected by epidermolysis bullosa (EB) and fu...
Producer Dee Daniels welcomes listeners back to the Grace, Grief and Grit podcast with guests Anne and Joe Davis to reintroduce Hallie Grace’s story, share updates in the Epidermolysis Bullosa (EB) community, and preview this year’s Butterfly Ball.
Anne and Joe recount Hallie Grace’s birth on June 5, 2021, her early mild symptoms, and her diagnosis after genetic testing of severe junctional Epidermolysis Bullosa. They describe th...
In this poignant episode of the Grace, Grief, and Grit podcast, hosts Dee Daniels and Joe Davis engage in a heartfelt conversation with Krista Isaacson, a wife, mother of six, and author of 'Unbearable Burden.'
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Krista shares the devastating experience of losing her daughter Elora to a cancerous brain tumor and the emotional journey that followed. Through vivid storytelling, Krista recounts moments from Elora's life, the sudden ...
In this episode of the Grace, Grief and Grit podcast, producer Dee Daniels and host Anne Davis welcome their special guest, Ariana Covarrubias.
Ariana, a 25-year-old from Los Angeles living with Recessive Dystrophic Epidermolysis Bullosa (EB), shares her inspiring journey of resilience and authenticity. She discusses the challenges and personal growth stemming from her condition, the importance of mental health and vulnerability,...
In this episode of the Grace Grief and Grit podcast, hosts Dee Daniels and Anne Davis talk with Marianne Ganem Poppell, owner of Savannah Master Calendar and local business advocate, about the importance of connections and community.
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The conversation highlights Marianne's diverse roles in supporting local businesses and nonprofits, including her work with Savannah Master Calendar, Simply Savannah Marketing, and various local bo...
In this episode of the Grace Grief and Grit podcast, producer Dee Daniels interviews Anne and Joe Davis about their impactful trip to Los Angeles for the Rock4EB event.
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They discuss the significance of the event, designed to raise awareness and funds for Epidermolysis Bullosa (EB), and their personal experiences meeting notable celebrities like Brad Pitt and Courteney Cox.
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The Davises share stories of kindness and generosit...
Welcome to the 'Grace, Grief and Grit' Podcast!
In this episode, producer Dee Daniels and co-host Joe Davis welcome a very special guest - educator and author, Dennis Vanasse. Dennis shares his journey of writing inclusive children's books, focusing especially on his book 'Everyone Belongs' which discusses Epidermolysis Bullosa (EB).
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The conversation delves into Dennis's inspiration, the impact of his work, and the importance ...
In this special episode of the Grace Grief and Grit podcast, producer Dee Daniels hosts a full house featuring Jenny Brewster, Tyler Cobb, and Megan Mason, all board members of Heroes for Hallie Grace. The group shares personal stories about how they became involved with the nonprofit and discusses the crucial mission of supporting families affected by Epidermolysis Bullosa (EB).
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They highlight various ways the community can co...
In this episode of the Grace Grief and Grit podcast, hosts Dee Daniels and Ann and Joe Davis sit down with Michael Hund, the CEO of EB Research Partnership (EBRP).
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Michael shares the mission of EBRP, which is the largest global organization dedicated to treating and curing epidermolysis bullosa (EB). They discuss Michael's journey in joining EBRP in 2017, the learning experiences along the way, and the transformative impact of ...
Meet Lyle Dillie! For dependable photography and videography services that offer quality outcomes with professionalism and attention to detail, your search ends here. We're so thankful to Lyle for providing top-notch videography services for the 3rd Annual Hallie Grace Memorial Ball for EB.
Lyle's expertise lies in Portrait, Nature, and Commercial Photography. He strives to create a comfortable atmosphere to naturally capture peopl...
Anne and Joe Davis are here to celebrate the success of the 3rd Annual Hallie Grace Memorial Ball for EB!
First - a BIG THANK YOU to all who were able to attend, volunteer, or support in any way. We did reach our financial support goals for the ball!! Secondly, we continue to evolve and grow as an organization. This year we saw firsthand our vision of "more connection" come to the surface.
Hallie Grace Davis is a beautiful soul th...
Nicholas A. Christakis, MD, PhD, MPH, professor at Yale University, is a sociologist and physician who conducts research in the areas of social networks and biosocial science. He directs the Human Nature Lab.
The author of four books and over 200 articles, Christakis was elected to the Institute of Medicine of the National Academy of Sciences in 2006 and was made a Fellow of the American Association for the Advancement of Science...
"It's not, obviously, the way we would want to meet, but I'm so grateful that we did" - Anne Davis says this in regard to becoming "chosen family" with Kaytlynn and Anthony - parents of Addilynn Grace - who had severe Junctional EB - and passed away on December 22, 2022.
Katlynn and Anthony include Addilynn in everything they do. They also do so much to raise awareness about Epidermolysis Bullosa. Both families take much needed ti...
We're grateful to be joined on this episode by Dr. Peter Marinkovich - Associate Professor of Dermatology, a faculty member of the Program in Epithelial Biology and the Stanford Cancer Biology Program.
We're taking a deep-dive into the history - as well as the available treatments and current research - of Epidermolysis Bullosa.
Dr. Marinkovich has an interest in inflammatory skin disease and is Director of the Stanford Bullous D...
Welcome to Season 2 of the Grace, Grief and Grit Podcast!
We're proud to kick off this new season with Anne and Joe Davis at the table to discuss the upcoming 3rd Annual Butterfly Ball for EB. On this episode, you'll get to know more about Epidermolysis Bullosa as well as the impact Heroes for Hallie Grace is having - and wants to have within the EB community.
As we continue to honor the life and legacy of Hallie Grace Davis, we ...
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