Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
Good morning, Thank you for listening to Community Access. My
guest today is Christine for Ussa. She is founder and
president of Sun Moon and Stars.
Speaker 2 (00:09):
Good morning, Good morning, Alison.
Speaker 1 (00:11):
So happy you could be here.
Speaker 2 (00:13):
Always a pleasure, my friend.
Speaker 1 (00:15):
So just a brief overview for those who don't know
about Sun Moon and Stars. What's it all about?
Speaker 3 (00:20):
So, Sun Moon and Stars is a nonprofit. We're based
out of Watertown, Connecticut, and what we do is we
do fun events and activities and provide opportunities for our
families for the kids to participate in all kinds of things.
Next year is actually our ten year anniversary. So we
are based out of Watertown, but we have families that
come from all over the state to our events.
Speaker 1 (00:38):
Wonderful. April is Autism Awareness Month, so it's so important
that we get the word out. Why is it so
important and what impact do you want to have about it?
Speaker 3 (00:47):
So it's a great question, Alison, because April it's a
time that's dedicated for us to promote understanding, advocacy and
also acceptance of autism. And there really is a need
for societal approach and support and we discuss you know, awareness,
Really we're acknowledging its existence.
Speaker 2 (01:03):
We know it's there.
Speaker 3 (01:04):
So the focus is on educating the public about you know,
what is it about? What are the characteristics, what are
some of the challenges. Every child is so unique and different.
So the shift that we're seeing is you know, we
say Autism Awareness Month, but it's really autism acceptance. You know,
we've shifted, We've moved into acceptance. And really the ultimate
goal is this idea of inclusion, you know, just to
society where everyone is accepted for who they are.
Speaker 1 (01:27):
Why is it important to build community in the autism space.
Speaker 3 (01:31):
It's it's really we play such an important and indispensable
role as we move in this space, and you know,
we're advocating for our children, and all of us do
it in slightly different ways, some more than others, some
less than others, and so on. But this whole idea
of community is you know, I remember when my son
got diagnosed when he was almost four years old. You know,
there really wasn't a lot of support and community. This
(01:53):
idea of community and it's really parents coming together and
families coming together in a way that's judgment free. So
whether there attending events or activities, attending a support group,
attending a supper club or calling each other on the phone,
going out and getting a glass of wine or.
Speaker 2 (02:09):
Whatever it may be.
Speaker 3 (02:09):
But it's this idea that you're not alone in this
space and we've all we're all on this journey, you know.
And I always say, we're on this journey together. We're all,
you know, on our little boats, on different journeys, but
kind of heading towards the same place, if that makes sense.
Speaker 1 (02:24):
And I love the advice that you'd give to parents.
What advice would you give to the public who really
just doesn't know what to do if maybe someone on
the spectrum is in their presence.
Speaker 3 (02:33):
I mean, honestly, you don't treat them any different, really.
I mean, you know, we're all people first, We're all
humans first, right, so I really feel that at the
end of the day, we don't give each other, give
each other enough grace. So what I mean by that
is if someone's acting a little differently, so what you know,
it's okay, if someone's having a hard time, you know,
what can you do to support that parent? If a
child is having a hard time. You know, what you
(02:55):
may see as a tantrum, maybe a sensory overload and
a meltdown, be something else entirely. So before we snap
to judgment that you know, oh that's just a fresh
kid or that's a brady kid, you know that that's
most likely not the case at all.
Speaker 2 (03:09):
There could be something else going on.
Speaker 3 (03:10):
So I think, really, when we talk about this is
just let's all pause a hot second before we do
pass judgment and really just accept everyone for who they are.
Speaker 1 (03:19):
So when you say Autism Acceptance Month, what else would
you like to see from the world in regard to that?
Speaker 2 (03:26):
You know, really what it comes down to.
Speaker 3 (03:28):
I think, you know, we always, like I said, we
talk about this idea of community, but you know it's
the supports that are needed. All the kids need different
supports on different levels and understanding that, you know, we
need to be there for one another in different ways.
So it's funny, you know, some of us autism parents,
autism moms, and autism dads, some of us do a
(03:49):
little more than others meeting. You know, some of us
have started nonprofits because we've seen the need. There's a
need for certain things, whether it's an educational need, whether
it's you know, for events, whether it's for support, whether
if it's a combination of the things, you know, and
as our kids are aging and getting older, you know,
we need to see more about housing. What are we
doing for these kiddos as they become young adults. What
(04:11):
are the services that are going to be available after
they age out after age twenty one twenty two? You know,
what are the supports in the community, you know, are
their work programs. So there's a lot of things happening
right now. Not to delve into the politics of it all,
but even at Hartford there's bills you know, on the
floor that you know, we're talking about different supports of
what's needed. And that's really it's where where it needs
(04:32):
to go. You know, we as advocates bringing the case
to you know, the state level and what we can
do to change some laws and provide some services and
relief to help us moving forward.
Speaker 1 (04:43):
So you have some upcoming fares, tell me about those.
Speaker 3 (04:46):
Yes, So there are quite a few upcoming different fares, walks,
different things, so I know. Thursday, April twenty fourth, CTFSN,
which is a group here in Connecticut, Connectic Family Support Network,
is hosting their one voice conference on the twenty sixth.
I'm actually helping my good friend Helen Taylor of the
(05:06):
Social Chase. She's hosting her fourth the Annual Autism Awareness
and Education Forum at Waterbury Arts Magnet School, and that's
a free event. I'm also going to be involved on
Monday the twenty eighth as a vendor at in Hartford
at the Capital, raising autism awareness at the Capital and
then Hospital for Special Care, which isn't too far away.
On April thirtieth, We're hosting a resource table there as well.
Speaker 2 (05:28):
So those are our.
Speaker 3 (05:28):
April events coming up, you know, which is exciting. So
it's a lot of opportunities to speak to families and
even educators and so on about not only our you know,
events and activities and what we bring to the table,
but I look at as a way to I'm meeting
new people, whether it be new families, I'm meeting new vendors,
new resources, new service organizations, other nonprofits. Because at the
end of the day, we're all trying to do something
(05:51):
and we all have our own little piece of the puzzle,
if you want to say, so, how do we all
come together and work together to support the community.
Speaker 2 (05:57):
That's the bigger piece of it.
Speaker 1 (05:59):
How is the world treating people with autism right? Now
are we doing a good job accepting them and providing
what they need? Are we behind?
Speaker 3 (06:08):
It's an interesting question because I feel we've gotten so
much better when they're little, to provide activities, events, sensory friendly,
judgment free, there's so many things for the kids because
the schools provide services.
Speaker 2 (06:21):
And things as well.
Speaker 3 (06:22):
It's when they become young adults that that's where the
services fall.
Speaker 2 (06:27):
You know, they're out of the school system. So now
in that.
Speaker 3 (06:29):
Regard, there needs to be a lot more work done
to provide the supports for parents, you know, as respite caregivers,
as you know, supports in the home, you know some
of our kiddos. You know, what about housing, what about
work programs? So those things need need a lot more
work and a lot more effort.
Speaker 1 (06:47):
So you have an amazing event that's coming up. I've
been talking about it in the air for some time now.
It's a beautiful Mother's Day event. I'll be there as
the MC. Let's talk about it.
Speaker 3 (06:57):
Yeah, we're very excited about this event. So for the
past few year we've always hosted a Mother's Day event
and it's been at Hawkridge Inery, which we love Hawkridge.
The Jeff Mchew is amazing. His staff is amazing. They've
been so supportive of us of us over the years.
So we have for this particular Mother's Day event on
May eighth, we have autism author and blogger Harry Carriello
(07:18):
coming in and she's going to give a talk about autism,
marriage in motherhood.
Speaker 2 (07:21):
We are so excited. She just launched her new book Autism.
Speaker 3 (07:24):
Out Loud, so she's you'll see her, you know, on
social media, you'll see her. I think she just had
an interview with Gail King, she was on the Today Show.
She's she's out there, you know, which is really really great,
and she's a fabulous person and she's going to talk
about all the things and we're very excited about it
because she's also going to do a little question and
answer session too, which is great.
Speaker 1 (07:44):
I don't have a child with autism, but I can
just imagine how difficult it could be if I did
and I was married, and the told that it would
take on a marriage. So I'm looking forward to hear
what she has to say, how you can help your
marriage survive this, and you.
Speaker 3 (08:00):
Know, it's marriage, it's relationships, whatever it may be. She
really is just a fabulous speaker. I've heard her speak before,
I follow her on social media and all the things,
So we're excited this event. It is a Mother's Day event,
but we're looking at it whether you're an autism mom,
you're a caregiver, you're a relative, you're a friend, your
support staff, you're a service worker in the industry, you're
(08:23):
an educator, it doesn't really matter. It's a slice of
our world and if you want to be you know,
part of the world and understand it a little better
and you talk to you how do you support the community.
This is a great way to support the community and
we're thrilled. So not only do we have you as
e mc and Carrie Carryel who's amazing a very good
friend of mine, Lisa cander or the Autism Mom coach
(08:43):
who has a fabulous podcast, is also going to be
saying a few words at the event. It's going to
be food, fun, drinks. You know, there's going to be
door prizes, swag, all kinds of fun things. It's really
going to be an amazing, amazing night. And we're also
doing a VIP from four to five, so that's a
little bit more of a one on one with Carrie Pryor.
Speaker 1 (09:00):
And it's only fifty dollars.
Speaker 3 (09:02):
Only fifty dollars for the event. It's it's going to
be a blast with so much.
Speaker 1 (09:06):
Work, so much, so much excited.
Speaker 2 (09:08):
It's really yeah.
Speaker 1 (09:10):
And it's the Watertown Meat Center, who makes the best food.
They make everything with love.
Speaker 3 (09:14):
Oh yes, Jessica does a phenomenal job. Her staff is
on points, so we're actually gonna have some of her
staff helping to serve. It's gonna be a beautiful buffet.
We have just so much great stuff plan for this event.
We really can't wait. Because at the end of the day,
it really is about you know, our new tagline, you
know is connection, Community, camaraderie, and that's really what this
(09:34):
event is all about, is getting together and you know,
meeting some new folks, getting to understand our community, and
just having a great time.
Speaker 1 (09:42):
What advice would you give to a mom who just
had a child diagnosed with autism.
Speaker 3 (09:48):
Allow yourself all the emotions, because it is it is
a time where you know there's gonna be a lot
of emotions involved with this, but understand that there is
as much support as you want out there, or as
least support as you want to there, meaning you're not
alone on this journey by any means. There's a lot
of great communities out there, whether it's ours or whether
it's any of the other local nonprofits in the area.
Speaker 2 (10:09):
We all have different support.
Speaker 3 (10:10):
Systems, and if you're someone who doesn't necessarily want to
do the in person, you know, there's so many social
media groups that you can join. There is so much
information out there now, so you can find the things
you need. But understand that really you're only as alone
as you want to be. You just have to find
your people. And we were blessed we have a lot
(10:30):
of new people that have joined us, and so our
older moms and I say older meeting older in the journey,
not necessarily older, but they become almost mentors and buddies
to the younger moms. And it's really great when we
have our multi support meetings to see the interactions. You know,
it's like, Okay, who's got something they need to share, positive, negative,
whatever it is, And you know, sometimes they just ask
for help, what can I have some advice? We're dealing
(10:52):
with this right now or this great thing happened. So
when you see all the back and forth, that's the
beauty of what we've built just makes my heart happy.
Speaker 1 (11:00):
And all of the activities and events for these kids
that they all even know exist.
Speaker 3 (11:04):
Yes, we have a lot of different events and activities
from art to legos to trampoline park events. You know,
we do sensory friendly movies. We have a phenomenal event
coming up on June nineteenth with lakewasapag So we're doing
an autism awareness night. It's our second one and it's
basically a private party for our families that evening. So
the park is closed to the general public, so lowered,
(11:27):
there's no crazy lights, lowered volume, if not completely shut
off on everything, and the kiddos just get to have
a blast being with their community.
Speaker 2 (11:33):
It's awesome, wonderful.
Speaker 1 (11:34):
I'm speaking with Christine faressa founder and president of sun
Moon and Stars that event again May eighth. It's all
about autism, marriage, motherhood. There's going to be speakers, I'll
be the MC there, food and drinks. It's just going
to be an amazing time. Go to Sunmooninstars dot org
to get your tickets. Thank you so much for being
(11:55):
here again today.
Speaker 2 (11:56):
Appreciate you, Thank you Allison. It's always a pleasure to
be here.