The Eye Believe Podcast

Welcome to The Eye Believe Podcast! A short description for what you can expect from this podcast to support you in your journey with ocular melanoma: - patient stories

- caregiver interviews

- The Eye Believe Seminar Recordings when we release them

- interviews with the experts

- mental health support from qualified experts

- announcements for what's going on in the world of ocular melanoma awareness and research

If you're int...

•Barbara's story• I was diagnosed with OM in April 2015. My optometrist found the tumor on a routine eye exam, and then referred me to the retinal specialist. I had a medium sized tumor with plaque treatment (4 days). I had the muscle released to insert the plaque. I didn't have tumor testing because insurance wouldn't pay for it in 2015. I have 20/40 vision in my right eye. I had a cataract removed, a laser surgery and now ge...

I was diagnosed with Choroidal Melanoma in March of 2008.

My optometrist found a freckle in my eye at a routine exam. I wasn’t going to say anything, but I eventually told her that I had been seeing a flash of light in my right eye for several months.

She sat me back down in the chair and took a much longer, more careful look. She said that she wasn’t qualified to diagnose anything, but that I had better have someone else take ...

A Cure in Sight is joined by Devyn Anderson, who speaks about her journey with ocular melanoma. She was diagnosed at age 23, in October of 2013. At such a young age, she was shell shocked to receive this diagnosis, and felt very “in the dark” as to what her diagnosis meant. Within a week and a half of diagnosis her eye was enucleated and she continued through her life, getting married within a few years of diagnosis. Despite ...

A Cure in Sight is joined by Dr. Scott Walter for a discussion on the importance of biopsies, and how they are being used in the field to diagnose ocular melanoma early on, as well as provide information for how patients should proceed after treatment with scan protocols. He explains the process of the biopsy, the risks involved, and what he does to ensure minimal risk in the procedure, as well as the importance of the biopsy in d...

A Cure in Sight is joined by Carrie Younger-Howard, a patient in Arizona living with ocular melanoma.

She expresses a piece of her journey below; tune in and listen as you’re able, then be sure to share her story with those you know in hopes of raising more awareness and funding for researching and finding a cure.

• ••••••••••••••••••••••••••••••••••••••••••••••••• “It’s malignant. You have cancer.”

My stomach clenche...

A cure in sight is joined by Paige Thompson, in an interview about her 4 year plus journey so far with Ocular Melanoma. After being told she was too young to need her eyes dilated, Paige scratched her left eye. This thankfully led to her ophthalmologist dilating both eyes and eventually referring her to further specialists who diagnosed her with Ocular Melanoma in July of 2017, at the age of 27. She shares that her biggest gifts...

A Cure in Sight is joined by Mila and her mom, Kezia, as well as Presley and his mom Stephanie to speak to their journey with ocular melanoma. Here’s a short snippet of each of their stories--tune into the podcast to listen fully! Be sure to subscribe, and share this episode with your friends and family on social--and we would LOVE it if you would consider making a donation to ACIS, or creating a fundraiser on social media to help...

Today, hear 10 tips compiled from our website and patient feedback to help newly diagnosed patients in navigating and understanding their initial diagnosis, especially during the first few visits with a doctor, namely:

1. Take notes during your appointments.
2. Stay off google and ask questions of experts!
3. Be prepared for long appointments, especially at first: Bring a light jacket, water, and a snack. 
4. Advocate for yourself!
5. Ask ...

A Cure in Sight is joined by Ashlely McCrary, a patient with Ocular Melanoma who is part of the Auburn, Alabama grouping of patients. Ashley shares her journey with ocular melanoma, beginning with her diagnosis in 2012 at age 42. She has been a constant and passionate advocate for raising funds to research the cause of ocular melanoma, cast light on this rare disease, and advocate for research for a cure! Despite being diagnosed ...

*Don’t forget to register for our first ever annual STEPS FOR SIGHT Challenge! Register yourself and your team at the link below: https://www.charityfootprints.com/sight/eventdetails DEADLINE TO REGISTER YOURSELF/YOUR TEAM is JAN 15! Don't wait! We start tracking our 7K steps a day on Jan 1-31!! Take steps toward a cure with us!  A Cure in Sight is joined by Dr. Harbour in an interview “from the vault” that we wanted to bring ba...

*Don’t forget to register for our first ever annual STEPS FOR SIGHT Challenge! Register yourself and your team at the link below: https://www.charityfootprints.com/sight/eventdetails DEADLINE TO REGISTER YOURSELF/YOUR TEAM is JAN 15! Don't wait! We start tracking our 7K steps a day on Jan 1-31!! Take steps toward a cure with us!  A Cure in Sight is joined by Emily Bingham to discuss the topic of grief. Emily is a grief coach, f...

*Don’t forget to register for our first ever annual STEPS FOR SIGHT Challenge! Register yourself and your team at the link below: https://www.charityfootprints.com/sight/eventdetails ******************************************************** A Cure in Sight is joined by Anne Osborne, an OM patient and also therapist, sharing her journey with Ocular melanoma thus far. She shares about the journey of being a patient with ocular me...