Talking Head Pain

In this episode of Talking Head Pain, Sarah is joined by Nicole, a nursing student living with migraine. Nicole shares her harrowing journey, the challenges of navigating health care, and how she turned her struggle into advocacy for herself and others. Nicole's experiences highlight the power of advocacy, the impact of stigma, and the importance of community support in living with migraine.

Join Sarah and Nicole for an episode th...

In this special episode of Talking Head Pain, Sarah is joined by colleagues Kelly Gavigan and Eric Stone as they delve into the nuances of episodic migraine care. They discuss GHLF's UpEnd Migraine Project, which aims to enhance health care provider education in primary and emergency care settings for better migraine management. Through a conversation that spans personal experiences and the project's objectives, the episode sheds l...

In this special episode of Talking Head Pain, recorded live at Headache on the Hill, Sarah brings together a diverse group of patient advocates to share their personal stories and reasons for advocating for migraine awareness and better treatment access. The episode delves into the importance of advocacy, the need for improved health care policies, and the power of sharing one's story to break the silence and stigma surrounding chr...

In this episode of Talking Head Pain, Joe is joined by Dr. Andrew Charles, Professor of Neurology and Director of the UCLA Migraine and Pain Program, as well as the current President of the American Headache Society (AHS). Together, they explore the groundbreaking updates in migraine prevention therapy, highlighting the AHS's recent position on CGRP inhibitors as a first-line treatment. Dr. Charles shares insights into the developm...

In this episode of Talking Head Pain, Sarah is joined by Nahid Shukralla, a migraine patient and visual artist who uniquely intertwines her experiences living with migraine into her artwork. Nahid shares her journey and how chronic migraine led her back to her first love: art. Nahid also delves into her innovative approach to visualizing migraine auras through digital art, offering a rare glimpse into the visual phenomena that many...

In this episode of Talking Head Pain, Sarah is joined by chronic migraine patient Taylor, to explore the intricacies of living with chronic migraine and navigating the health care system. They discuss the evolution of emergency care for migraine patients, the shifting landscape of migraine treatment, and how living in pain can affect our mental health. The episode also touches on the critical role of patients in treatment decisions...

In this episode of Talking Head Pain, Joe Coe welcomes Izac Ross, Founder of the Haven Headache & Migraine Center and a patient advocate. They delve into Izac's lifelong journey with migraine, beginning with his childhood diagnosis and the challenges of dealing with the condition through various stages of life.

Izac discusses his experiences with a range of treatments, highlighting the transformative effects of newer therapies...

In this episode of Talking Head Pain, Joe Coe welcomes Dr. Andrew Blumenfeld, Director of The Los Angeles Headache Center and a world-renowned headache specialist who helped develop the Botox injection protocol used in the pivotal migraine trials.

They delve into the complexities of migraine management, discussing recently introduced concepts like "migraine freedom" and the multimodal approach to treatment. Dr. Blumenfeld addresse...

In this special episode, Joe speaks with Dr. Anne Luebke at the European Headache Congress in Barcelona. Dr. Luebke, a researcher and Associate Professor at the University of Rochester in New York, shares insights into her work and research on vestibular migraine. She explains the challenges in treating this condition, particularly the ineffectiveness of older migraine medications in addressing vertigo symptoms.

Dr. Luebke offers ...

In this special episode, Joe speaks with Dr. Franchesca Fiorito, Board Certified Neurologist & Headache Subspecialist in Puerto Rico, at the European Headache Congress in Barcelona.

Dr. Fiorito shares her extensive work in advancing headache medicine, and details her efforts in establishing headache medicine education, clinics, and a specialized headache center tailored for patient comfort. The conversation touches upon the ch...

In this special episode of Talking Head Pain, Joe speaks with Dr. Miguel Lainez, Chairman of the Department of Neurology at the Hospital Clínico Universitario, and Professor of Neurology at the Catholic University of Valencia, at the European Headache Congress in Barcelona.

Dr. Miguel Lainez shares his valuable insights on key topics at this year’s congress, including medication overuse headaches and vestibular migraine. He unders...

In this special episode of Talking Head Pain, Joe speaks with Dr. Jana-Isabel Huhn-Doll at the European Headache Congress in Barcelona. Dr. Huhn-Doll, a neurologist and pain specialist from Germany, shares insights into the use of Botox for chronic migraine treatment.

Together they discuss the PHASE III Research Evaluating Migraine Prophylaxis Therapy (PREEMPT) protocol and the 'follow the pain' approach, which offers a more indiv...

In this special episode of Talking Head Pain, Joe speaks with Dr. Eyal Maoz Halevy, a Frontiers Award recipient at the American Headache Society’s Scottsdale Headache Symposium.

Dr. Eyal Maoz Halevy shares what he has found most impactful at the Symposium, and discusses his research on the role of physical activity as a vital sign (PAVS), revealing surprising insights about physical activity levels in migraine patients.

Contact O...

In this episode of Talking Head Pain, Joe Coe is joined by Kelly Gavigan Lorant, Director of Data Management and Analytics at GHLF, as they explore the findings from a recent patient-centered survey on migraine. Kelly also explains how GHLF's research registry, originally focused on rheumatic and musculoskeletal conditions, has expanded to include a broader spectrum of chronic diseases, including migraine. Discover the insights gai...

In this episode of Talking Head Pain, Sarah is joined by Kellie, a staunch advocate for migraine and traumatic brain injuries (TBI). Kellie walks us through her journey of living with a TBI from when she was in college to now with the critical work she is doing to provide migraine educational resources to employers and employees via Migraine at Work.

Listen in as Kellie bravely opens up about her struggles with depression and migr...

In this episode of Talking Head Pain, Sarah is joined by Avi, who lives with migraine and other chronic illnesses. Through his migraine journey, Avi shares with us the difficulty he and his family encountered trying to get diagnosed. Avi also breaks down the challenges he faces navigating the health care system as a trans man and non-binary person. He shares his experiences of being misgendered and deadnamed (when a transgender per...

In this week’s episode of Talking Head Pain, Sarah is joined by Amanda, a migraine patient, advocate, stay-at-home parent, and educator living with multiple chronic health conditions. Join Sarah and Amanda as they dig into the ebbs and flows of being a parent living with chronic migraine, things we’ve learned from the migraine community, getting the confidence to advocate and speak up for ourselves, the importance of normalizing ta...

In this week’s episode of Talking Head Pain, Sarah is joined by Bernadette, a migraine advocate, digital creator, and somatic-informed certified educator who runs a chronic illness Instagram account called “chronicaccounts.” Bernadette is a former classroom teacher who now focuses on educating and supporting others to understand their life with migraine disease better.

Join Sarah and Bernadette as they discuss Bernadette’s journey...

In this week’s episode of Talking Head Pain, Joe is joined by Dr. Nina Riggins, a board-certified neurologist who specializes in headache medicine and traumatic brain injury. The episode sheds lights on the intersection of migraine, weight management, and the impact of a new class of weight-loss drugs, GLP-1 agonists. Joe provides his own patient insight by sharing his personal experience with weight loss and migraine. Together, th...