Talking Head Pain
Talking Head Pain is a podcast that confronts head pain, head on. Brought to you by the Global Healthy Living Foundation and hosted by migraine advocate Joe Coe, this show explores how people living with migraine, cluster headache and other types of intense pain find ways to better manage their disease. To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up. Or visit GHLF.org for more information.
Episodes
In the final episode of our three-part Talking Head Pain mini-series, host Erik Stone sits down with Dr. Alicia Duyvejonck, a nurse practitioner and nationally recognized leader in headache care, to explore the real-world challenges of treating acute migraine attacks in clinical settings. They unpack common barriers, including systemic constraints, insurance hurdles, and comorbidities that complicate treatment selection. From newer...
In this second episode of Talking Head Pain: For the Healthcare Professional, our host Erik Stone speaks with Dr. Nina Riggins, a neurologist and leading headache specialist, about the critical role of preventive treatment in migraine care. They unpack common misconceptions among healthcare providers, explore when to start preventive therapies, and discuss how to avoid medication-overuse headache. With a focus on individualized car...
In this special episode of Talking Head Pain: For the Healthcare Professional, our host Zoe Rothblatt sits down with Erik Stone, Director of Data, Learning, and Evaluation at GHLF, and a migraine patient advocate, to explore why getting a migraine diagnosis can feel like a battle—and what health care providers can do about it. Drawing on survey data from healthcare professionals and patients, Erik reveals key disconnects in h...
In this episode of Talking Head Pain, Joe sits down with neurology experts Dr. Saikali and Dr. Blumenfeld. They explore the significant advances from past therapies to today's targeted treatments that offer new hope for migraine patients. Discover how the integration of new medical strategies and patient education is reshaping the way the condition is managed, aiming for what Dr. Blumenfeld calls “crystal clear days” of no pain and...
In this episode of Talking Head Pain, Sarah is joined by Shelby, a singer-songwriter navigating life with migraine and dysautonomia. Together, they delve into how chronic pain influences both personal and artistic endeavors. Shelby shares insights on how her condition has shaped her music career and the comfort she finds in her creative expression, offering listeners a window into the everyday triumphs and struggles faced by those ...
In this episode of Talking Head Pain, Sarah is joined by Chandler, a chronic pain recovery coach and migraine patient, to explore the realities of living with chronic migraine and cluster headaches. Chandler shares her experience with hemiplegic migraine and how it propelled her into a life dedicated to helping others manage their pain. The episode dives into the impact of chronic pain on mental health, the importance of recognizin...
In this special episode of Talking Head Pain, Joe is joined by renowned headache specialists Dr. Tepper and Dr. Ailani to discuss a groundbreaking shift in migraine treatment accessibility. They delve into the recent endorsement by the American Headache Society of calcitonin gene-related peptide (CGRP) blockers as the primary preventive treatment for migraines, a move that promises to simplify the patient's journey toward relief.
T...
In this episode of Talking Head Pain, Sarah is joined by Christa, a death doula and community care facilitator navigating the complex intersections of chronic illness and queer identity for Black, Indigenous and People of Color (BIPOC) individuals. Together, they explore Christa's journey through the debilitating impacts of migraine and endometriosis, highlighting the profound role of community care and self-advocacy in managing ch...
In this special episode of Talking Head Pain, Joe speaks with Dr. Christopher Gottschalk, Director of Headache Medicine and the Headache Medicine Training Program at Yale University, Connecticut, live from the American Headache Society's scientific meeting. Dr. Gottschalk shares insights from a new study revealing how prolonged use of anti-CGRP drugs can reduce prodromal symptoms and the occurrence of headaches. He discusses the ev...
In this special episode of Talking Head Pain, Joe is live from the American Headache Society's scientific meeting with Alicia Duyvejonck, a nurse practitioner at Genesis Headache Clinic in Davenport, Iowa. Together they discuss a research poster to which they both contributed titled "Person-Centric Communications in Migraine: Delphi-Like Consensus on Best Practice." This study, conducted using the Delphi consensus model, involved h...
In this special episode of Talking Head Pain, Joe is live from the American Headache Society's scientific meeting with Dr. Mario Peres, President-Elect of the International Headache Society. Dr. Peres, hailing from São Paulo, Brazil, discusses the application of artificial intelligence (AI) in migraine diagnosis and management. They discuss how AI tools are being developed to improve diagnostic accuracy, which is crucial for effect...
In this special episode of Talking Head Pain, Joe speaks with Dr. Nada Hindiyeh, Director of Headache Medicine at Metrodora Institute and CMO at Haven Headache & Migraine Center, and Dr. Lauren Natbony, Founder and CEO of Integrative Headache Medicine of New York. Recorded live at the American Headache Society’s (AHS) Annual Scientific Meeting in San Diego, CA, they discuss the complex interrelations between migraine, autonomic...
In this episode of Talking Head Pain, Sarah welcomes Katrina, a patient advocate navigating multiple conditions including migraine and endometriosis. They discuss Katrina's journey — from years of misdiagnosis to finally finding a doctor who would listen and offer effective migraine treatment options. Katrina and Sarah dive into the overlap of endometriosis and migraine advocacy, highlighting the challenges and breakthroughs along ...
In this episode of Talking Head Pain, Sarah is joined by Nicole, a nursing student living with migraine. Nicole shares her harrowing journey, the challenges of navigating health care, and how she turned her struggle into advocacy for herself and others. Nicole's experiences highlight the power of advocacy, the impact of stigma, and the importance of community support in living with migraine.
Join Sarah and Nicole for an episode tha...
In this special episode of Talking Head Pain, Sarah is joined by colleagues Kelly Gavigan and Eric Stone as they delve into the nuances of episodic migraine care. They discuss GHLF's UpEnd Migraine Project, which aims to enhance health care provider education in primary and emergency care settings for better migraine management. Through a conversation that spans personal experiences and the project's objectives, the episode sheds l...
In this special episode of Talking Head Pain, recorded live at Headache on the Hill, Sarah brings together a diverse group of patient advocates to share their personal stories and reasons for advocating for migraine awareness and better treatment access. The episode delves into the importance of advocacy, the need for improved health care policies, and the power of sharing one's story to break the silence and stigma surrounding chr...
In this episode of Talking Head Pain, Joe is joined by Dr. Andrew Charles, Professor of Neurology and Director of the UCLA Migraine and Pain Program, as well as the current President of the American Headache Society (AHS). Together, they explore the groundbreaking updates in migraine prevention therapy, highlighting the AHS's recent position on CGRP inhibitors as a first-line treatment. Dr. Charles shares insights into the developm...
In this episode of Talking Head Pain, Sarah is joined by Nahid Shukralla, a migraine patient and visual artist who uniquely intertwines her experiences living with migraine into her artwork. Nahid shares her journey and how chronic migraine led her back to her first love: art. Nahid also delves into her innovative approach to visualizing migraine auras through digital art, offering a rare glimpse into the visual phenomena that many...
In this episode of Talking Head Pain, Sarah is joined by chronic migraine patient Taylor, to explore the intricacies of living with chronic migraine and navigating the health care system. They discuss the evolution of emergency care for migraine patients, the shifting landscape of migraine treatment, and how living in pain can affect our mental health. The episode also touches on the critical role of patients in treatment decisions...
In this episode of Talking Head Pain, Joe Coe welcomes Izac Ross, Founder of the Haven Headache & Migraine Center and a patient advocate. They delve into Izac's lifelong journey with migraine, beginning with his childhood diagnosis and the challenges of dealing with the condition through various stages of life.
Izac discusses his experiences with a range of treatments, highlighting the transformative effects of newer therapies ...
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