Sarcoma Stories
We're excited to announce, "Sarcoma Stories" a new podcast from SFA. Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more. Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes. We will also have a post episode discussion on our new facebook group. Join Now: https://www.facebook.com/groups/512452631597704
Episodes
On this episode of Sarcoma Stories, we welcome Shaun Nerney—actor, singer, performer, Dorito enthusiast and avid Knicks fan—to share his journey as a care partner to his fiancée, Meghan, who has been living with fibromyxoid sarcoma on the dura of her brain. Shaun reflects on meeting Meghan after her diagnosis, how his role has grown alongside their relationship and her treatment experience, and how running has become both a way to ...
On this episode, we speak with Margaret Livermore, a member of SFA's Public Policy Committee and a dedicated advocate for the sarcoma community. Margaret shares her experience with leiomyosarcoma, first diagnosed in 2002 and recurring 16 years later. She discusses the importance of self-advocacy for informed decision-making and the value of supporting others facing similar situations.
The conversation also addresses systemic inequit...
Join us as we speak with Katie Wintergerst, who shares her personal experience with synovial sarcoma. Katie discusses the importance of seeking multiple opinions at sarcoma centers to make informed treatment decisions and provides valuable insights into participating in early-phase clinical trials. We also explore her journey as a single parent of two young children while living with sarcoma, her impactful advocacy work, her leader...
On this episode we speak with Jenny Sage, a parent of a pediatric sarcoma survivor, Gracie. Jenny shares her perspective on advocating for children with sarcoma and others in the sarcoma and pediatric cancer communities. We discuss supporting children and families through a sarcoma diagnosis, the importance of emotional processing, and ways to help others.
Jenny’s Instagram: @jgoodmansagehttps://www.instagram.com/jgoodmansage/
Mike Cacioppo, diagnosed with osteosarcoma in 2021, shares his experience of being a part of the sarcoma community as well as the amputee community and how advocacy for both has become a part of his life. He also talks about parenting while navigating a sarcoma diagnosis and how he maintains an optimistic mindset through all of the challenges he's faced.
Mike's Subtype: https://curesarcoma.org/sarcoma-subtypes/osteosarcoma/
On this episode, Maria shares the sarcoma journey of her daughter Aubrie, who was diagnosed with CIC-DUX4. Maria speaks about the diagnosis experience of a teenager, including having conversations about fertility preservation before starting chemo and ways she's honoring Aubrey after her passing. While working to fulfill her daughter's bucket list, Maria has also been the driver for helping SFA bring the Race to Cure Sarcoma to Aus...
In this episode, we speak with the Brenneman family who lost their father and husband, David, 12 years ago. We discuss the care partner experience of navigating a spouse's sarcoma diagnosis while also raising young children and what it has been like for the family to find connection to David after his passing. The Brenneman family shares about how this experience has fit into their lives and evolved over the years and talk about th...
We're thrilled to welcome Susie Donohue, a uterine leiomyosarcoma survivor, for our third episode! We talk about navigating a new sarcoma diagnosis, what exactly a sarcoma center is, and the decision to disclose or not disclose your diagnosis at work.
Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704
Discussion Guide: https://curesarcoma.org/sfa...
We're thrilled to welcome Jenna Pothier for our second episode! Join us as this DFSP survivor shares the importance of shared decision making between care team, patient, and care partners. She also talks about the challenges of being an adolescent young adult going through a life changing diagnosis during big life transitions, finding supportive communities and purpose in advocacy work, and shares her advice on supporting someone d...
Join us for our first episode of our new podcast "Sarcoma Stories". We're thrilled to welcome our first guest, Natasha Allen! Join us as this synovial sarcoma survivor shares her inspiring journey, from diagnosis and clinical trials to using social media as a therapeutic tool and platform for awareness.
Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/5124526...
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