F*** It, I Have a Brain Injury
Two guys with brain injuries share the lived experience in collaboration with a speech/language pathologist. Co-hosts Ken and Jesse interview peers about their experiences following Acquired Brain Injury (ABI) and healthcare professionals and friends and family members who spend time with people who have an ABI. Melissa Capo, M.S., CCC/SLP, along with graduate students, supports the co-hosts in the planning, interviewing and review of podcast episodes. An audio engineer professional and his students collaborate with the team for editing and audio production. This work is an application of project-oriented intervention in ABI rehabilitation. *The first season was recorded at The College of St. Rose in Albany, NY, USA For information, questions or to request to be a guest on the show, contact Melissa Capo @effitpodcast0@gmail.com
Episodes
In this episode, the team catches up with Caroline, a former group member and friend from The College of St. Rose in Albany, NY. Caroline shares her current recovery successes and challenges since her TBI from Diabetic Ketoacidosis (DKA) in 2010, when she was just 10 years old. She talks about progress she is still making with the help of her own determination and her physical trainer. She describes some current strug...
On recommendation from our previous guest, Rachel Levy, we sit down with architect and traumatic brain injury (TBI) survivor Robert de Miguel to hear his incredible story. Using Voiceitt technology to assist his communication, Robert shares his incredible journey from studying architecture around the world and earning a master's degree at Harvard to surviving a devastating car accident that left him with a severe brain injury...
Co-hosts talk with Dr. Rachel Levy, SLP and co-founder of The Babel Group in New York City. Rachel explains advances in technology to support non-standard speech after stroke and TBI or other causes of dysarthria. She provides a demonstration of Voiceitt, an AI-driven speech recognition tool, and shares insights about how technology can help make sure everyone who has something to say gets heard.
Introduced by our last guest, Jamie Arber from The Supported Living Group, Ken and Jesse talk with artist and stroke survivor LeRay Pablo and Senior Art Program Manager Rebecca Maloney from Inspire Arts about how creative, person-driven programming supports rehabilitation, and provides meaningful opportunities for community participation through exhibitions and workshops. Hear LaRey's inspiring journey back to art and...
In this episode, hosts interview Jamie Arber, Licensed Professional Counselor, TBI survivor and Executive Director of The Supported Living Group (SLG). Jamie discusses how his personal experience influenced his work in helping people with Acquired Brain Injury find a new purpose. He describes the challenges and realities with ABI Waiver Services in Connecticut and specific programs SLG provides in order to ensure oppo...
To kick off Season 2, the co-hosts interview neuropsychologist Dr. Kate Gould from Monash University in Victoria, Australia. In this episode, Kate provides a simplified definition of neuropsychology and its role in helping people who have had changes in behavior after ABI. She describes the Positive Behaviour Support + Plus approach and discusses cyberscams and CyberAbility—a collaborative project that resulted from a person'...
In this last recording at The College of St. Rose, the guys put Melissa Capo in the interview seat for the Season One finale. The group discusses the evolution of the PEPtalks project group and other groups at The College of St. Rose that helped address cognitive, communicative and behavioral challenges and the value of the graduate student clinicians in helping provide one on one attention and support. In the discussion, they high...
In this episode, Ken and Jesse talk with Dr. Jerry Hoepner, SLP and professor at The University of Wisconsin-Eau Claire, about the Chippewa Valley Aphasia Camp and the importance of establishing meaningful connections to help people with ABI reduce their cognitive-communication impairment and increase their quality of life.
For more information about the Chippewa Valley Aphasia Camp, please email Mary Beth Clark at Clark.mar...
BONUS EPISODE!
In this crossover episode, Renee Garrett, host of "Brainstorm(s) Podcast" discusses with Jesse and Ken how their lived experience inspired them to create a podcast. They reflect on meaningfulness, communication and cognitive growth and how their identity has been positively impacted by sharing their story and the stories of others with ABI.
*Head to Speech Therapy PD earn ASHA CEUs for this episode* ...
The guys interview Julie Hart, Speech/Language Pathologist and (at the time) Director of the Neurogenic Communication Program at The College of St. Rose in Albany, NY. In this episode, Julie describes foundational elements of the program that prioritized individualized, project-oriented interventions and made it an award-winning program. The group discusses how cognitive/communication tasks are integrated into goals for meaningful ...
In Part 3 with Andy, he reflects on a 2023 Book Club author visit when we were lucky enough to have Albany, NY’s own William Kennedy talk about writing “Legs” - a book the group had just read. Co-hosts discuss the positive downstream effects of Book Club and ongoing community interaction as a result.
In Part 2 of this 3 part conversation, Andy talks with co-hosts about Book Club roles and the value of creating support materials for the group by the group. They discuss the development of materials as mini-projects that give purpose in between weekly meetings. Andy discusses how Book Club has helped his ability to communicate in other aspects of his life.
In Part 1 of 3, Andy discusses how his participation in Book Club has helped him with reading after his TBI. Together with the hosts and SLP, specific reading strategies are offered along with some on-brand humor of three friends in the chronic phase of their recovery.
In this second part, Wendy talks about employment issues with support services (and the irony of the laws), Medicaid, SSDI and SSI paperwork requirements, Waiver transportation woes and ways to resolve conflict. Her thorough description highlights "the job of a good service coordinator."
In this first of two episodes, Wendy Decker, describes her role as a long time Service Coordinator for the New York State Traumatic Brain Injury Waiver Program. She describes how NYS administers the Home and Community Based Support 1915 (c) Traumatic Brain Injury Medicaid Waiver program. The co-hosts invite Wendy to discuss the challenges and positive aspects of the waiver including the guiding principle of "freedom of choice." She...
In this episode, Melissa and the hosts talk with Shelly about how she sustained her initial injury and (then subsequent injuries) and challenges and strategies associated with losing your ability to drive and having to rely on transportation services. Listen for some strategies and a potential business idea for entrepreneurs out there!
More on the highs and lows of having Home Health Aides. In this episode Shelly describes characteristics and behaviors of excellent aides and some red flags to watch out for. She discusses her use of a Self-advocacy training video to orient and train new Home Health Aides and also tells her two worst aide stories. Heads up- one is X-rated.
In Part 2 of this conversation, Kim Verner discusses different types of guardianships, including representative payees and how caregivers can help adults with Acquired Brain Injury maintain independence in a supportive environment.
*Note: This interview was recorded in Albany, NY, USA in April 2024.
In Part 1 of this 2 part episode, the guys interview Elder Law and Disability Attorney, Kim Verner. She describes how to set up a Special Needs Trust and the important aspects of estate planning following Acquired Brain Injury.
*Note: This interview was recorded in Albany, NY in April 2024.
In this episode, Jesse interviews Ken about his recent experience moving to a new home. They separate physical/mobility challenges associated with hemiparesis from cognitive challenges after ABI. Cognitive strategies include labeling drawers and cabinets and asking family to help organize. Physical accommodations include moving appliances and fixtures on the strong side, using a rolling cutting board, installing...
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