GOALS: An ALS United Podcast

Pennsylvania State Representative Kyle Mullins joins the ALS United Mid-Atlantic GOALS Podcast to discuss his family's personal ALS story, advocacy wins for ALS care and research, connecting with other ALS families, and the power of using your personal story.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and provi...

Jerry Dawson, President and CEO of ALS United, joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaboration within the ALS community, the growth and mission of ALS United, and the hope and promise in new research and technologies. Learn more about ALS United nationally at www.alsunited.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, adva...

Yentli Soto Albrecht, PhD,  @searchforaselfcure  joins the ALS United Mid-Atlantic GOALS Podcast to talk about her family's genetic history with ALS and her personal mission to end the disease through research. In this episode, Yentli talks about what motivates her, what she's learned, and how research can bring hope and motivation to all.

Our mission is to unite and empower the ALS community through a collaborative approach to fos...

Alair Altiero, PhD, LPC, provides mental health support for people with ALS and caregivers as part of the multidisciplinary team at Penn State Health Hershey Medical Center. In this GOALS Podcast, Alair discusses the man aspects of mental health, when and how she offers her guidance, handling burnout, and how stress impacts caregiving.

Our mission is to unite and empower the ALS community through a collaborative approach to fosteri...

Piera Pasinelli, PhD, Director, Weinberg ALS Center, and Gemma Krautzel, B.S., Clinical Research Coordinator, join the ALS United Mid-Atlantic GOALS Podcast to discuss the BioBank at the Jefferson Weinberg ALS Center in Philadelphia. In this podcast, they also talk about the process of post-mortem tissue donation, developing trust with ALS patients and families, multidisciplinary care, and collaboration with the ALS United Mid-Atla...

Director of Care Services Steve Spaulding, MA, joins the ALS United Mid-Atlantic GOALS Podcast to talk about the structure of our Care Services Department, the recent International ALS/MND Symposium, patient and family events, and more.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care...

Bryan Rosica is a teacher and father living with ALS. He now uses assistive technology to speak. In this ALS United Mid-Atlantic GOALS Podcast, Bryan and his wife Lisa discuss their ALS journey from diagnosis to today, including support from ALS United Mid-Atlantic care professionals, speaking at events like the Annual Celebration, and connecting with students to explain ALS.

Our mission is to unite and empower the ALS community th...

Regina Shuster joins the ALS United Mid-Atlantic GOALS Podcast to discuss her family's history with ALS and her work at events such as the ALS United Walk.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic...

Daniel Kelly joins Alisa Brownlee to discuss the important topic of Swallowing and ALS to address concerns, safety, and best practices.

Daniel Kelly, MA, CCC-SLP, AT, is a speech-language pathologist and assistive technologist at the Jefferson Weinberg ALS Center in Philadelphia. With nearly two decades of experience in medical speech pathology, he’s focused on swallowing assessment, communication technology, and clinical training ...

Zachary Simmons, MD and Kathleen Twomey, MD join the ALS United Mid-Atlantic GOALS Podcast to share their work at Penn State Health Hershey Medical Center and their new innovations around respiratory care and ALS. Dr. Simmons has led the ALS Treatment Center at Penn State Health Hershey Medical Center for 30 years and Dr. Twomey is adding her expertise as a pulmonologist for ALS patients. O

ur mission is to unite and empower the AL...

Mark VandeBraak, PhD, FT, MT-BC joins the ALS United Mid-Atlantic GOALS Podcast to discuss issues about processing grief for those impacted by ALS. Dr. Mark talks about the various forms of grief, expressing compassion and empathy, opening up about our concerns, and what help is available for everyone.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, adva...

Tim Kurkjian and his son Jeff Kurkjian are hosts of the baseball podcast "Is This a Great Game or What?" They also share a strong support for the ALS cause after their family's loss of Tim's brother Matt to ALS.

Tim is the proud recipient of the 2022 BBWAA Career Excellence Award for his work as a baseball writer and journalist. In this episode of the ALS United Mid-Atlantic GOALS Podcast, Tim and Jeff talk about their family's his...

In this podcast episode, Alisa Brownlee and Amanda Cuth discuss the challenges and strategies related to speech therapy for individuals with ALS. They explore the impact of ALS on communication, the importance of voice preservation techniques such as voice banking and cloning, and the role of technology in enhancing communication. The conversation also covers compensatory strategies for speech therapy, emergency communication needs...

Gale Ferranto and Buona Foods are uniting to match your donations for #GivingTuesday to ALS United Mid-Atlantic. In this GOALS Podcast, Gale discusses her mother's battle with ALS and her support for ALS care and research.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support t...

Charles Poeppelman joins the ALS United Mid-Atlantic GOALS Podcast to discuss how Synchron is developing Brain Computer Interface technology to improve the lives of people with ALS. In this podcast, we discuss how AI can enhance the power of BCI, how BCI can improve safety, and how this technology can address accessibility and communication.

Learn more about the January 21st educational webinar at learnaboutbci.com Additional infor...

Alisa Brownlee hosts this special ALS United Mid-Atlantic GOALS Podcast with guest Jamie Pace from  ⁨@amRAMP⁩  about the benefits of stair glides for people with ALS. In this episode, Alisa and Jamie talk about the process of installing a stair glide and how it can be used to improve access in the home.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, adv...

Bill O'Sullivan is a veteran living with ALS. He joins the ALS United Mid-Atlantic GOALS Podcast to talk about his family's history with ALS, his family's proud history of military service, his participation in ALS research, and his years of support for the ALS United Walk. Listen to his story and join our efforts today.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold researc...

Dr. Irene Rombel is the CEO, President, & Co-Founder of BioCurie. In this ALS United Mid-Atlantic GOALS Podcast, she talks about how AI can be a tool to advance research into diseases like ALS. Dr. Rombel also talks about how AI can reduce costs of research so more companies can invest in rare diseases, what therapies are working now, and what gives her hope in the future of medicine. Learn more about her work at www.biocurie.a...