From The Heart: The HeartKids Podcast
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease. We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD. Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD. From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD.
Episodes
In this episode of From the Heart, host Sami Glastonbury sits down with Dr Stephanie Perrier, Paediatric and Congenital Cardiac Surgeon at the Royal Children's Hospital Melbourne. From her early training in France to performing life-changing surgeries in Australia, Stephanie shares her path into cardiac surgery and why she still sees the heart as magical.
They explore what a typical surgery day looks like, who’s in the room dur...
In this episode of From The Heart Sami chats with Emily Hayes, a speech pathologist and feeding specialist who works closely with babies and young children, including those who’ve had surgery or spent time in intensive care.
Listen as Sami and Emily discuss nasogastric (NG) tubes, feeding difficulties, speech delays as well as what to expect during recovery, how to support your child at home, and when it might be time to seek extr...
In this episode of 'From The Heart', our host Rachael chats to Annabel Turner - a young heart adult who has tricuspid artresia. Listen as Rachael and Annabel chat about having a heart condition has not stopped Annabel from living a full, rich and exciting life.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childho...
In this episode of 'From The Heart', our host Rachael chats to Stacey Micallef - a sexologist and relationship & trauma counsellor based in Geelong, Victoria. Listen as Rachael and Stacey chat about how CoHD can impact sexual health and relationships, and the strategies you can employ to build healthy, fulfilling sexual relationships.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-pro...
In this episode of 'From The Heart', our host Rachael chats to clinical psychologist Carlye Crank about mental health, medical trauma and the unique ways in which physical health can impact your mental health.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.
For support, informa...
In this special episode for Reconciliation Week, Angela Webb, HeartKids’ Aboriginal and Torres Strait Islander Community Engagement Manager, has a yarn with Tanika Parker, RHD Nurse Navigator, and Genavie Tabuai, Health Worker Coordinator for Maternal, Child and Family Health Programs, both from Torres and Cape Hospital and Health Service.
Tanika and Genavie speak about the realities of delivering care across remote communities in F...
In this episode of "From the Heart," join our host, Sami, for a conversation with Mitch McGovern.
Mitch is a football player with Carlton, and a HeartKids Ambassador. Sami and Mitch chat about Mitch's connection with CoHD, and how his trajectory changed after his best friend, Logan, passed away due to complications with his condition.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-fo...
In this episode of "From the Heart," join our host, Sami, for a conversation with Dr Shannon Schedlich.
Shannon joins the podcast this episode, to chat with Sami about strengthening family units, and promoting nuanced support for all members. Shannon shares critical insights in acknowledging emotions, allowing space and an opportunity for siblings to share time with parents, and the significance of a siblings&ap...
In this episode of "From the Heart," join our host, Sami, for a conversation with Curtis McGrath.
Curtis is an Australian Paralympic gold medalist in paracanoe who lost both his legs while serving as a combat engineer in Afghanistan. His extraordinary evolution from soldier to Paralympic icon has inspired millions worldwide, with his journey taking on new meaning in 2024 when he and his wife Rachel welcomed thei...
In this episode of "From the Heart," join our host, Sami, for a conversation with Mahan Ahmadiram, an adult navigating her life with CHD, with CH-FIT, community, and exceptional strength.
Sami and Mahan discuss the significant journey Mahan and her family have experienced across several countries, and the many surgeries and supports that have bolstered her resolve and strength to this day.
Mahan has rece...
In this episode of "From the Heart," join our host, Sami, for a conversation with Cindy Hutchison.
Cindy and Sami chat about Cindy's extraordinary experiences with supporting her daughter Maddi, and grandson York, through their exceptionally challenging heart journey.
Cindy shares incredible insight as to support and routines she offered, and the ways in which the whole family rallied around their newest...
Welcome to From the Heart: The HeartKids Podcast, Season 4.
In this episode of "From the Heart," join our host, Sami, for a conversation with Chloe Peck, a young adult who is a sibling to a heart teen.
Join Sami and Chloe as they discuss the complexities of a heart journey, for siblings and extended family members, and the extraordinary efforts and routines Chloe's family implemented to bolster thei...
Welcome to From the Heart: 2024 Wrapped!
As we have closed off 2024 and into 2025, we're bringing you some fan favourite episodes of From the Heart, season 3.
Here is Encore #5 - Erin Ferguson
In this episode of From the Heart, Tahnee Jash is joined by Erin Ferguson, a dedicated paediatric Rheumatic Heart Disease (RHD) clinical nurse consultant from the Happy Heart Clinic in Far North Queensland.
Eri...
Welcome to From the Heart: 2024 Wrapped!
As we have closed off 2024 and looking into 2025, we're bringing you some fan favourite episodes of From the Heart, season 3.
Here is Encore #4 - Danielle Green
Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2.
Sami and Danielle chat about Danielle and her husband Leon's jo...
Welcome to From the Heart: 2024 Wrapped!
As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.
Here is Encore #3 - Amber Adamson: Ask a Nurse
In this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consultant at Prince Charles Hospital, who specialises in Adult Congenital Heart Disease.
Before the episode was recorded, we...
Welcome to From the Heart: 2024 Wrapped!
As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.
Here is Encore #2 - Kate Strickland, Child Life Therapist.
Kate is a Child Life Therapist, who works in the community with children - one of the first Child Life Therapists to work outside of a hospital framework.
Sami and Kate chat about how to pre...
Welcome to From the Heart: 2024 Wrapped!
As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.
Here is Encore #1 - Elijah's Story
Elijah, a proud Kamilaroi/Wiradjuri man, shares his remarkable journey living with childhood-onset heart disease (CoHD) with our host, Tahnee Jash.
Elijah works as an Indigenous Liaison Officer for the Departm...
In this episode of "From the Heart," join our host, Sami, for a catch-up conversation with podcast producer, Mel.
Mel and Sami chat about Sami's current pathway to seeking a diagnosis for her daughter, as well as updates from all the incredible events and outcomes from HeartKids for the year.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focuse...
In this episode of "From the Heart," join our host, Sami, for a conversation with Amy Heafield.
Many families who have spent time at the Royal Children's Hospital in Melbourne will have crossed paths with Amy; Amy is a Support Coordinator with HeartKids, and a parent to a heart teen.
Amy and Sami chat about what HeartKids Support looks like, the joys of supporting teens on teen camp, and considerati...
In this episode of "From the Heart," join our host, Rachael, for a conversation with Jaden Dixon.
Jaden is a 29-year-old from Brisbane who was born with Hypoplastic Left Heart Syndrome (HLHS). Jaden studied social work and now works for Queensland Health.
Listen in as Rachael and Jaden discuss their heart journeys, Jaden's involvement with HeartKids, the importance of connecting with the peer commu...
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