Welcome to Clearly KC, a podcast produced by the National Keratoconus Foundation, featuring information about life with this eye disease. Each month, Dr. Melissa Barnett OD, a leading authority shares valuable insights, speaks with medical professionals who treat this condition and listens to patients and families affected by keratoconus. Our goal is to share information to help you manage your keratoconus, seek out the best treatment options and live a full and productive life. Clearly KC is for patients, family members, and medical professionals interested in learning more about KC. This podcast is intended to provide general information about KC and should not be considered an alternative to medical consultation and treatment with your eyecare provider. Dr. Melissa Barnett, OD, FAAO, FSLS is an internationally recognized expert in keratoconus and other conditions that affect the cornea. She is Director of Optometry at University of California, Davis. National Keratoconus Foundation is the oldest and largest organization dedicated to raising awareness of the eye disease keratoconus. Although based out of University of California, Irvine, NKFC’s reach is truly international. To learn more, visit nkcf.org
In this episode of Clearly KC, Dr. Melissa Barnett sits down with Dr. Jennifer Harthan, Professor at the Illinois College of Optometry, Chief of the Cornea and Contact Lens Center, and the newly appointed Executive Director of the GP Lens Institute.
Together, they explore the power of education, research, and patient-centered care—especially when it comes to keratoconus. Dr....
In this episode of Clearly KC, Dr. Melissa Barnett features Rocky Kelley, an artist and passionate keratoconus advocate who won the senior category in our most recent World Keratoconus Day contest. The episode delves into Rocky’s journey as an artist living with keratoconus and the inspiration behind his winning artwork, Shattered.
In this episode of Clearly KC, Dr. Melissa Barnett interviews Dr. Jay Mashouf, an experienced optometrist and owner of Scripps Poway Eye Care in San Diego. Dr. Mashouf shares his approach to managing keratoconus (KC), emphasizing the importance of compassionate communication, early diagnosis, and personalized treatment plans, including options like crosslinking and scleral lenses. He also highlights the value of collaborating with ...
Clearly KC host Dr. Melissa Barnett welcomes the Chief Medical Officer at Epion Therapeutics Dr. Michael Belin, and VP Clinical Operations at Epion Therapeutics Tiffany Haynes to discuss advances in keratoconus diagnosis and treatment. Dr. Bellin highlights the importance of early detection and intervention, made possible by modern imaging tools like corneal tomography. The conversation also covers Epion’s Phase 3 clinical trial of...
Clearly KC host Dr. Melissa Barnett OD welcomes Dr. Fayiz Mahgoub OD the founder of Augmented Vision Labs a company that is utilizing cutting edge technology to help end contact lens dropout due to difficulty with lens application and removal.
Clearly KC host Dr. Melissa Barnett OD welcomes Dr. Justin Schweitzer OD from Vance Thompson Vision in Sioux Falls, SD to discuss co-management of keratoconus patients. Dr. Schweitzer notes he practices in a tertiary eyecare setting, and local optometrists regularly refer patients for testing, treatment, or surgery. Dr. Schweitzer acts as the conduit between community optometrists and the Vance Thompson Vision surgeons. He repor...
Clearly KC host Dr. Melissa Barnett OD checks in with Dr. Karen DeLoss OD of the Kellogg Eye Center at University of Michigan and reads questions collected from keratoconus patients. Dr. DeLoss offers some brand name solutions that she recommends and cautions that not all solutions work for all lenses. She reveals she quizzes her patients on their lens management techniques and uses these sessions to find out if her patients have ...
Clearly KC host Dr. Melissa Barnett OD explodes some myths with crosslinking expert Dr. William Trattler MD, of the Center for Excellence in Eye Care in Miami. He shares that patients with extremely thin corneas can be successfully crosslinked if the surgeon makes some adjustments in the treatment protocol. While most crosslinked patients will not need a second procedure, he observed that a repeat treatment can be safely performe...
Clearly KC host Dr. Melissa Barnett OD visits with Mark Morarie, inventor of The LensBase, a useful device that helps patients insert scleral lenses. Mark remembers receiving the keratoconus diagnosis after his near perfect vision declined. His vision improved with scleral lenses, but he struggled with applying his lenses. Over several years, he tinkered with designs to produce an aid for contact lens wearers. Now an FDA regis...
Clearly KC host Dr. Melissa Barnett OD spends some time with Ash Arellanes, digital content creator and enthusiastic KC advocate. Ash shares her journey of vision loss until she finally was diagnosed with keratoconus. She remembers how she experienced relief to finally have an answer along with confusion and loneliness of having a condition she knew nothing about. Ash had an existing online presence for her dog, Demi, and she st...
Clearly KC host Dr. Melissa Barnett OD welcomes colleague Dr. Jason Marsack PhD from the University of Houston, where his lab is engaged in correcting higher order aberrations. Dr. Marsack shared his story of a keratoconus diagnosis while a college student and his vow to apply his engineering skills to improving the vision of others. He and Dr. Barnett discuss isolation, empathy and the “KC Personality” which he observes may be ...
Clearly KC host Dr. Melissa Barnett OD chats with Carl Domke of McKinney, Texas. Carl is the winner of the 2023 World KC Day Photo Contest with a photo collage that celebrates improved vision with contact lenses. The 80-year old photographer shared what it was like to be diagnosed with KC in 1959 and how, as a high school sophomore, he was given contact lenses that ‘changed his life’ and made it possible to continue his education...
Clearly KC host Dr. Melissa Barnett OD meets up with Myeisha Essex of Los Angeles to discuss tips, tricks and hacks to simplify life with keratoconus. Myeisha shares her KC journey from diagnosis during graduate school to her career as an entertainment journalist. Her eye doctor convinced Myeisha to refocus on her vision health, and she left long days under bright studio lights to start Essex Media Group and to work as a meditat...
Clearly KC host Dr. Melissa Barnett OD visits with Poppy McCabe, a recent graduate of Falmouth University in England. Poppy was runner-up in the 2023 World KC Day Photo Contest. Her submission shows her at her final art exhibit at school. Investigating symptoms associated with her Ehlers Danlos syndrome, Poppy learned keratoconus was the source of her vision struggles. She used her diagnosis as inspiration for an installation t...
Clearly KC host Dr. Melissa Barnett OD asks Dr. Ann Ostrovsky MD about managing the care of individuals with Down syndrome who are diagnosed with keratoconus. Dr. Ostrovsky who is chief of ophthalmology at ECU Health in Greenville, North Carolina stresses the importance of avoiding eye rubbing and scheduling regular eye exams to monitor for vision changes. She notes that it can sometimes be difficult to get reliable test results ...
Clearly KC host Dr. Melissa Barnett OD welcomes Dylan Muyambo of Cape Town, South Africa. For the 2023 World KC Day Photo Contest, Dylan submitted a joyful picture with his students on a field trip. Dylan shares with Dr. Barnett how he struggled with his vision from a young age, was diagnosed with severe keratoconus at age 9, and underwent corneal transplants in both eyes by the time he was 20. Dylan admits because of his poor v...
Clearly KC host Dr. Melissa Barnett OD invites Dr. Araba Otoo OD to talk about pubtometry – a word Dr. Otoo uses to describe the intersection of optometry and public health. Ghana-born Otoo is a recent graduate of The Ohio State University College of Optometry; she started Cherish Eyesight & Vision, a nonprofit whose mission is to increase vision health literacy and educate the public about eye conditions. Partnering with NKC...
Clearly KC host Dr. Melissa Barnett OD sits down with keratoconus guru Dr. Christine Sindt OD, from University of Iowa for a discussion of higher order aberrations (HOA), a common concern of individuals with keratoconus. Dr. Sindt notes doctors have sympathized with their patients who complain of halos or double vision but until recently could do little to fix the problem. While the technology is still in its infancy, Dr. Sindt r...
Clearly KC host Dr. Melissa Barnett OD is joined by ophthalmologist Dr. Steven Greenstein MD and optometrist Dr. John Gelles OD, partners at the Cornea and Laser Eye Institute in New Jersey. Dr. Gelles shares results of wave front guided scleral lenses, an emerging technology that creates a 3-D model of the cornea to craft individualized contacts. Dr. Greenstein spoke of CTAK (corneal tissue addition keratoplasty) a new surgical ...
Clearly KC host Dr. Melissa Barnett OD catches up with KC expert Dr. Andy Morgenstern OD who shares that his career in keratoconus was inspired when he first had access to pentacam tomography, a technology that visualizes the back (posterior) of the cornea. He also spoke of a soon-to-be published paper that used tomography to screen Chicagoland students to reveal the prevalence of pediatric KC in the US is much higher than previou...
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