The Red Suitcase (with Deborah J. Cohan)

Caregiving for aging and dying parents can be tough for anyone, but it's even tougher when it forces you to confront longtime family dynamics of abuse. Sociologist Deborah Cohan blurs the lines between academic research on family caregiving and violence, and her own personal story about a father she calls both adoring and abusive. 

Her memoir is called Welcome to Wherever We Are: A Memoir of Family, Caregiving, and Redemption.

Transcript

DEBORAH COHAN: Time is really strange in a nursing home. People are motivated by the mealtimes. Newspaper delivery is listed as an activity. They're just mundane activities in my life or your life, but they become these big events at these nursing homes. When you're there, and you’re well, and you're witnessing that, it's really hard to watch and to do time the way they're doing time.

BLAIR HODGES: Deborah Cohan knows there's nothing easy about caregiving for a dying parent. She watched over her father as he spent the last few years of his life in a nursing home.

Witnessing a parent's decline into dementia is hard enough, but Deborah's situation was especially complicated because it happened after she endured years of emotional and verbal abuse from her father.

What's it like to want abuse to stop, but a relationship to continue? Is it possible to forgive someone who can't even remember what they did?

Deborah's answers to these questions might surprise you. She draws on her expertise as a sociologist and a domestic abuse counselor to make sense of her own life after her father's death. Her book is called Welcome to Wherever We Are: A Memoir of Family, Caregiving, and Redemption. Deborah joins us to talk about it right now.

There's no one right way to be a family and every kind of family has something we can learn from. I'm Blair Hodges, and this is Family Proclamations.

A UNIQUE BOOK ON ELDERCARE (1:50)

BLAIR HODGES: Deborah J. Cohan, welcome to Family Proclamations.

DEBORAH COHAN: Thank you so much for having me, Blair. It's great to be here.

BLAIR HODGES: It's great to have you. Deborah, there are a lot of books out there about caregiving for aging parents. There are also a lot of books out there about what it's like to witness and experience abuse in families. But there aren't a whole lot of books that are about both of those things in the same book.

You've written a book here about what it means to care for an ageing and ill parent who also happens to have been an abuser. That's how you introduce it. Talk about the decision to write a book like that. It's a unique book.

DEBORAH COHAN: Thanks for noticing that. I guess sometimes we write the books we wish existed so we could have them as our own guide, and as an expert in domestic violence, and also as someone who’s studied the sociology of families, it made perfect sense for me to create what I call a "braided memoir."

These two stories are very much interlocking in the book, and in many people's lives. Even if there's not actual abuse in someone's family, there's so much relatable stuff in the book because of the different complicated dynamics we all find ourselves in just by living in our families. Most families have some complicated dynamics of some sort. I was really trying to help others to think about that, and to think about how these two things that are happening in the culture are really often happening at the same time, which is the complicated family piece, and also the fact that more and more people are involved in some amount of caregiving.

And it tends to be gendered, where women tend to be doing it more.

BLAIR HODGES: You're a specialist who’s studied family violence as well. You say “family violence is a dynamic process. It's not an event or an isolated set of events.” It's an environment and you say it unfolds and takes different shapes, often over years of time. Now in your own personal experience, you've come to see how it can be lodged in caregiving. Talk a little bit about that.

DEBORAH COHAN: A lot of times when domestic violence is talked about, especially in the media, we hear about it as an episode, or we hear about it as an incident—sort of an isolated event. What I learned through working with violent men for so many years at the oldest battering intervention program in the country—which is Emerge in Boston—and also working with survivors, is that these things that are referred to as “incidents” or “events” or “episodes,” they are connected experiences. It usually escalates over time.

If practitioners and advocates and others in the field, and even just people's friends, can help people to see the connection and help them connect the dots between this episode and then this one—because I talk about how there's connective tissue, if you will.