Not Just Patients
Hi! We’re Caitlin Rich and Clarinda Cerejo, Co-Hosts of Not Just Patients, a global podcast that aims to bring stakeholders together and break barriers to meaningful patient involvement in healthcare. We both live with rare diseases, are EUPATI Fellows, and work in healthcare research and communications. Over the past two and a half years, we have hosted in-depth conversations with a range of healthcare stakeholders to examine how healthcare can become more inclusive, collaborative, and effective. We were recently interviewed by the World Medical Journal, won the Acquisition International Non-Profit Organisation Award for Excellence in Driving Patient Engagement 2025, and were named Patient Advocacy Podcast of the Year in the Corporate LiveWire Awards 2025/2026. Our guests are patient advocates, healthcare professionals, industry representatives, and other stakeholders who interact with the health system at large. Each of our guests brings in a unique perspective on patient engagement and shares stories of initiatives they’ve championed or been involved in. We will soon be launching a special series on Underserved Communities in Healthcare. The series will explore what meaningful patient involvement looks like for communities that healthcare systems too often fail to adequately see, hear, or design for. This includes children and young patients, disabled and neurodivergent people, LGBTQIA+ communities, racial and ethnic minorities, and people from lower- to middle-income countries. Have feedback or suggestions for us? We'd love to hear from you! Email us at info@notjustpatients.com or find us on LinkedIn.
Episodes
Welcome to this episode focused on the LGBTQIA+ Community as an Underserved Community in Healthcare!
In this episode, Caitlin and Clarinda are joined by Carter Hemion, a rare disease patient advocate, author, and artist, and Simon Stones, a patient and caregiver advocate and healthcare communication specialist.
Carter lives with a connective tissue disorder and multiple intersecting identities, including being ...
Welcome to the launch episode of our special new series on Underserved Communities in Healthcare. On this episode, Caitlin and Clarinda are joined by Ashish Rishi, Founder and CEO of Unwritten Health.
Ashish has dedicated his career to making healthcare more inclusive, not as a moral cause, but as a practical necessity. He serves as a member of the Scientific Advisory Board for IHI-READI, a Horizon Europe initiative on healt...
📣 COMING SOON ⌛
Very excited to announce that our new podcast series on Underserved Communities in Healthcare will be reaching you soon!
For this series, we are getting bigger and bolder and having tougher conversations that we can't wait to share with you.
Here's a little preview, featuring our own Caitlin Rich and Clarinda Cerejoas well as a few of our series guests and partners:
Ashish Rishi from Unwritt...
Join us for a compelling conversation with Dr. Dheepa Rajan, who serves as a Health Systems Advisor at the European Observatory on Health Systems and Policies, as we explore what social participation means and how it can transform health policy and health system performance.
Prior to joining the European Observatory, Deepa spent over 15 years at the World Health Organization (WHO) headquarters in various health system roles, coverin...
Join us for a powerful conversation with Stacy Hurt as we dive into what patient safety really means in clinical trials and everyday medical practice.
Stacy is Chief Patient Officer at Parexel, where she leads efforts to embed the patient voice across clinical research and drug development. A patient, survivor, and caregiver herself, Stacy brings both professional expertise and lived experience to her work—advocating for more ...
Joining Caitlin and Clarinda for this episode of Not Just Patients is Emma Doble, Patient and Public Strategy Editor at The BMJ, for a powerful conversation about what it really means to embed patients in medical publishing in more than just name.
Emma leads the BMJ’s patient partnership strategy across the journal and BMJ Group, including the What Your Patient Is Thinking series, patient and public partnership at BMJ events, ...
Join us for an enlightening conversation with Dr Richard Fitton, retired GP and long-time champion of patient access to electronic medical records, as we explore what it really means to share data, power, and responsibility with patients.
Richard’s journey spans more than four decades of pioneering work: from early computerised records in the 1980s, to leading one of the first NHS pilots for online patient record access, moder...
Join us for an enlightening conversation with Jennifer Bright, President and CEO of the International Consortium for Health Outcomes Measurement (ICHOM), where we talk about redefining value in healthcare by measuring what truly matters to patients.
Jennifer is a long-time leader in patient-centered health policy and outcomes, with past executive roles at the Innovation and Value Initiative, the Society for Healthcare Epidemiology o...
Join us for this special Rare Disease Day episode with Emily Reubin OBE, Co‑founder and CEO of Duchenne UK, as we talk about transforming grief into impact and reshaping rare disease care through patient advocacy.
Emily co-founded Duchenne UK after her son was diagnosed with Duchenne muscular dystrophy (DMD). Emily launched the Duchenne Children’s Trust in 2012, which later merged with Joining Jack to become Duchenne UK. Emily...
Join us for an inspiring conversation with Derick Mitchell, Executive Director of Patient Focused Medicines Development (PFMD), adjunct professor at Trinity College Dublin, and a dedicated leader in patient engagement and multistakeholder healthcare innovation.
Derick’s journey has taken him from translational research to his previous role as CEO of IPPOSI—the largest patient network in Ireland—where he spent close...
What was one key learning around patient engagement that you're taking away from 2025?
What gave you hope in patient engagement and advocacy this year?
What’s one thing you’d love to see in patient engagement next year?
These are the questions that we asked not one... not two... but FIVE amazing guests for this special year-end episode of Not Just Patients.
Listen to our incredible guests Michelle Warner, Connie...
Join us for an insightful conversation with Cécile Tardy-Srinivasan, EUPATI Fellow, patient advocate, and leader of the DayOne Accelerator, as we explore what it takes to bring meaningful patient and stakeholder involvement to health tech innovation.
With over 20 years of cross-sector experience bridging pharma, healthcare technology, and patient advocacy, Cecile draws upon her own journey as a rare disease patient to share unique p...
Love to listen or prefer to watch? For the first time, the video recording of this episode is available on our YouTube channel: https://www.youtube.com/watch?v=ansbXaF9B6c
Join us for the first in-person recorded episode of Not Just Patients!
We were so excited to be invited to the launch of the National PPI Festival in Dublin, organised by the PPI Ignite Network and the Royal College of Surgeons in Ireland (RCSI). Listen (or...
Patient advocate and engagement consultant Trishna Bharadia joins Caitlin and Clarinda to explore how advocacy can be supercharged by tapping into diverse channels, from niche community networks to public mass-media platforms that reach millions.
Trishna works with multiple stakeholders to embed the patient voice into medicines development and healthcare. She's a visiting lecturer on patient engagement at the Centre for Pharma...
Join us for a thought-provoking conversation with Mark Doyle, as we explore the vital role of empathy in healthcare and how truly understanding the patient experience can drive better outcomes for patients, professionals, and organisations alike.
Mark Doyle is the founder of the award-winning, immersive patient experience company A Life in a Day. He began his professional life as an actor and has spent the past 20 years applyi...
Join us for an empowering conversation with Estelle Jobson, EUPATI Fellow and patient expert living with endometriosis, about equipping patients for shared decision-making.
Estelle is a founding patient partner at Geneva University Hospitals (HUG) programme, PartnerREC, and a seasoned communications professional with an MSc in Publishing from NYU. With decades of experience supporting patient-centric research and serving as a patien...
Join us for this inspiring conversation with Urvashi Prasad as we discuss how patients can be involved in shaping healthcare policy.
Urvashi was a Director in the Office of the Vice Chairman at NITI Aayog, the Government of India's premier policy think tank, and co-authored India's first Voluntary National Review on Sustainable Development. She also contributed to the management of the Covid-19 pandemic in India, the implem...
This episode of Not Just Patients is all about the need for viewing patient engagement as a professional practice integral to healthcare, rather than just passion work.
Our expert guest today is Emma Sutcliffe, Chief Patient Officer at the International Society for Patient Engagement Professionals (ISPEP). Emma is one of the most cited and published experts in the field of patient engagement and patient sciences, with her most recen...
In celebration of our First Anniversary at Not Just Patients, we hosted a very special LinkedIn LIVE Podcast Takeover with Guest Host Joel Nelson on World Health Day, the 7th of April 2025.
An award-winning patient advocate who uses his story of psoriatic-associated juvenile idiopathic arthritis to inspire change, Joel is the Founder of Psoriatic Disease UK. He also hosts The Joel Nelson Podcast and The Chronic Pain Club Talk ...
On this episode, we talk to Lilly Stairs about thriving in your career and managing your health while living with a chronic illness.
Lilly Stairs is an internationally recognized patient advocate, serial entrepreneur, philanthropist, and sought after speaker. Her purpose was ignited in a hospital bed after being diagnosed with multiple autoimmune diseases. She is the Founder of Patient Authentic, a boutique consultancy that helps he...
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