One Voice for Neurology

Patient voices have the power to shape research, healthcare, policy and the future of neurology — but how can those voices be heard?

In this episode of One Voice for Neurology, Sam Pauly is joined by Joe Lindahl, CEO of Mission MSA, and Naomi Fukuda, parent and patient advocate at Dravet Syndrome Japan, to explore the power of patient advocacy and lived experience. They discuss the barriers that can prevent patients and famili...

As the European Federation of Neurological Associations (EFNA) celebrates 25 years of advocacy, Sam Pauly is joined by Dr. Orla Galvin, Executive Director of EFNA, which serves as the Secretariat for the OneNeurology partnership. Together, they explore how advocacy for neurological conditions has evolved, why collaboration is essential to making neurology a global health priority, and how early and meaningful patient involvement is...

Neurological conditions are one of the biggest health challenges facing the world today — yet access to neurological care remains deeply unequal.

In this episode of One Voice for Neurology, Professor Riadh Gouider, First Vice President of the World Federation of Neurology, Head of Neurology at Razi Hospital in Tunis, and Ambassador for the One Neurology Partnership, shares his perspective on the future of global neurology.

This...

In this episode of One Voice for Neurology, we explore a major new initiative set to reshape the future of brain research and collaboration across Europe — the European Partnership for Brain Health.

Sam Pauly is joined by Frédéric Destrebecq, Executive Director of the European Brain Council, to discuss how this ambitious, multi-country partnership is bringing together national funders, researchers, and stakeholders to better c...

In this episode of One Voice for Neurology, Abdelfatah Ibrahim and Kevin Rostásy, the new Chairs of the OneNeurology Partnership, discuss progress in strengthening global collaboration across the neurology community. They reflect on key lessons from recent advocacy efforts and outline priorities for the year ahead.

From advancing policy engagement to improving care and access for people living with neurological disorders worldwide, ...

In this episode of One Voice for Neurology, we explore how personalised and precision approaches in neurology can improve care for everyone by recognising individual differences in brain health, including gender, sleep, and hormonal factors. 

Our guests — Dr Antonella Santuccione Chadha, medical doctor, neuroscientist, and founder of the Women’s Brain Foundation, and Dr Thomas Penzel, President of the World Sleep So...

Stroke and other neurological conditions are a leading cause of death and disability worldwide—but solutions exist. In this episode of One Voice for Neurology, Sam Pauly explores the global neurology agenda just days before the 4th UN High Level Meeting on NCDs, with five years left to meet the SDG 3.4 target of reducing premature mortality from non-communicable diseases.

Hear from:

• Mia Grupper (Executive Director) and Prof...

Released on World Brain Day

In this episode of the One Voice for Neurology podcast, we explore the lasting and often invisible impact of neurological disorders on individuals, families, and carers.

We begin with a focus on encephalitis, featuring Dr Ava Easton from Encephalitis International. She discusses the causes, long-term effects, and the importance of the new WHO Technical Brief on encephalitis—developed in partnership w...

In this episode, host Sam Pauly explores the role of education, health literacy, and stigma in shaping experiences of neurological conditions. Genein Letford discusses how early education can support brain development and why the arts can be an effective tool for fostering understanding of neurological health.

Abraham Ntshalintshali and Mary Secco join a roundtable discussion on epilepsy-related stigma, sharing insights from communi...

In this episode, host Sam Pauly explores the healthcare challenges faced by displaced people, particularly those with neurological disorders. Sebastian Einseidel from the UN OCHA discusses global displacement in regions like Sudan, Syria, and Ukraine. Yulia Ostapenko shares her experience being displaced from Ukraine, highlighting the human side of these crises. Dr. Bindu Menon offers insights from India on the impact of environmen...

 With a focus primarily on Sub-Saharan Africa in this episode we explore the challenges currently faced across the continent in accessing neurological care.  We’re joined by neurologists from the region as well as hearing from the WHO on the range of issues and barriers to care, from the low number of neurologists to the problem of stigma and discrimination.   Our guests will be discussing how these challenges ...

In this episode Sam Pauly meets 4 neurologists to discuss the challenges faced in India across the life course.  We’ll examine the role that Brain Health can play in India; how it can be promoted and its role in prevention of and protection from neurological disorders. We’ll learn more on what it’s like to live with a neurological disorder in India as a child and also as an elderly person and we’ll hear...

How can the  WHO Global Action Plan be implemented at regional and national levels around the world?  

In this episode Sam Pauly and her guests try to answer this question by case studying the region of Europe and discussing how nations can address disparities and inequalities as well as achieve success through collaboration and with EU initiatives like Healthier Together.   

The One Voice for Neurology po...

Neurology is a truly global challenge, with the low- and middle-income countries carrying the heaviest burden. 

This episode is about the challenges facing people living with neurological disorders in different regions of the world, and how governments, healthcare professionals and patient advocates can help turn things around. 

Tune-in and join Sam Pauly and her international guests in the debate. 

The One Voic...

Celebrate with us the first-year anniversary of the OneNeurology Partnership and the One Voice For Neurology podcast with our host, Sam Pauly and her guests.

In this episode, we go over the developments and achievements made by the OneNeurology partnership in the last 12 months. We will discuss what we can gain by addressing neurology as ONE, why the WHO Global Action Plan is a game changer, and what comes next. 

The On...

Join us in our 9th episode as Sam Pauly is joined by Christopher Agbega from Ghana.  Christopher lives with Hereditary Motor Sensory Neuropathy, and is an advocate and peer trainer for the Ghana NCD Alliance and a projects officer of the Ghana Federation of Disability Organizations.  We discuss what it's like living with a neurological disorder in a developing country as well as the struggle to reach diagnosis and the imp...

Join us for this special 10 minute episode where we sit down with Dr Dan Chisholm, a mental health specialist at the WHO Regional Office for Europe and take a look at the global cost of neurological disorders and how it can be addressed. 

The One Voice for Neurology podcast with Sam Pauly is produced on behalf of OneNeurology, a global partnership bringing together neurological organisations, clinicians, researchers, patient ad...

In our final episode we look ahead and ask what is now needed at International, European and national level. 

We’ll be talking with Dr Tarun Dua, from the World Health Organisation Brain Health Unit and hearing some success stories from Iceland and Norway. 

 We’ll be discussing the Global Action Plan and hear what’s next for the OneNeurology Initiative and how people can get involved. 

How do we best care for people living with neurological disorders?  

In this episode we discuss why prioritising neurology as a whole means truly putting the patient centre stage.    

We’re joined by a panel of guests from a cross section of the neurology community as well as hearing from someone living with migraine. 

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The One Voice for Neurology podcast...