Hot Topics in Kidney Health

Starting dialysis often means rethinking your relationship with food—and that includes eating out. But dining out doesn’t have to be off-limits. In this episode, we’re talking about the emotional and practical sides of dining out, from advocating for yourself at restaurants to balancing dietary needs with quality of life.

In today's episode we heard from:

Lauren Levy is the practice owner and principal dietitian i...

Vascular access is the lifeline for people on dialysis. Today we’ll cover the different types, how doctors determine the best option, what the surgery and recovery involve, and more! Today we're joined by Dr. Vandana Dua Niyyar, and kidney warrior Brittany Dickerson to discuss vascular access–an important topic that will hopefully help you all listening feel more informed and confident in your care. 

In today's epi...

Behind every kidney cancer diagnosis is a person navigating difficult decisions about treatment and care. Today, we’re diving into how to navigate the side effects of kidney cancer treatments and how to tell the difference between side effects and warning signs. This episode is supported by Exelixis. 

In this episode we heard from: 

Andrew Allers was diagnosed incidentally with clear-cell Renal Cell Carcinoma (RCC) ...

Join us for the discussion on the treatment and management of hyperphosphatemia or high phosphorus levels in the blood, a common challenge experienced by people living with chronic kidney disease on dialysis.

In this episode we heard from: 

Dr. Annabel Biruete is an Assistant Professor and Registered Dietitian in the Department of Nutrition Science at Purdue Un...

For people living with kidney disease, clinical trials can offer hope—but not without questions or concerns. Today, we talk with Dr. Nadine Barrett, Glenda Roberts, and Luz Baqueiro about lived experience, community trust, and the power of being asked.

In this episode we heard from: 

Dr. Nadine J. Barrett is a Professor in the Department of Social Sciences and Health Policy in the Division of Public Health Sciences and t...

Last time we talked about kidney xenotransplantation, we were joined by Towana Loony and Tim Andrews, who shared their personal experiences with receiving a xenotransplant. Today, two doctors who helped propel xenotransplantation forward, Dr. Vineeta Kumar and Dr. Leonardo Riella, are here to explain the science and what comes next.

This episode is supported by eGenesis and United Therapeutics

In this episode we heard from: 

V...

History is often made through science, but it is lived through people. Today, only four living people in the US have received a xenotransplant or a transplant using a gene-edited pig kidney. Two of these pioneers are here to share in their own words what it means to be part of medical history. Their stories remind us that behind every breakthrough is a person waiting, hoping, and choosing to move forward even when the path ahead is...

A recent online survey of more than 10,000 transplant recipients across the U.S. and Canada found that ninety-two percent had side effects from their immunosuppressive medications. And while most patients trust their care teams, one in four skips doses because of their side effects.  Four in ten skip due to cost. Today, I’m joined by Anne Bina, a kidney transplant recipient, and Nurse Practitioner, Nicole McCormick, to d...

When it comes to kidney health, taking care of your mind is just as important as taking care of your body. Today, we’re exploring how mental health support can improve your overall well-being and breaking the stigma around therapy and medications.

 In this episode we heard from:

Lydia Johnson, MSW -Lydia is a social worker based in Massachusetts. They previously worked in direct care as a dialysis social worker and now s...

According to a 2024 World Health Organization study, over the last 50 years vaccines have saved over 154 million lives worldwide from over 20 life threatening diseases. As vaccines are facing skepticism, we are here to cut through the noise and lay out the facts as to why staying up-to-date on vaccinations is especially important for kidney patients.

This episode is supported by Moderna. 

In today's episode we heard from: ...

Discover expert insights on kidney stone prevention and management in this podcast episode featuring a physician, dietitian, pharmacist, and patient. Learn about key kidney stone risk factors and explore how dietary adjustments can reduce stone recurrence. Experts discuss fluid intake strategies, medication considerations, surgical indications, and even unconventional questions about roller coasters’ impact on stone passage. ...

This NKF Live crossover episode features a discussion on shared decision making on medical treatment options for people with atypical hemolytic uremic syndrome (aHUS). Our faculty includes a patient expert and advocate -- the actor and Substack author, Taylor Coffman, as well as two nephrologists, Holly Koncicki, MD and Ramy Hanna, MD, an expert on aHUS. They’ll cover a range of topics, with a focus on how to work with your m...

GLP-1 medications like Ozempic were designed to treat diabetes—but they’re quickly becoming known for weight loss and possible kidney benefits. Kidney doctor Holly Kramer and kidney patients Patrick Gee, and Jane DeMeis, are here to break down what these medications are, how they work, and what people with kidney disease need to know.

In today's episode we heard from:

Holly Kramer, M.D., MPH, is a practicing nephrologi...

Imagine you’ve been on the kidney transplant waitlist for years, hoping for a second chance at life. Then, one day, you find out that your estimated wait time was longer than it should have been—not because of your health, but because your kidney function was calculated using a race coefficient. That was the reality Black kidney patients faced. Now, that’s changing. Dr. Vinay Nair, the Medical Director at North Sh...

Did you know that people who have received a kidney transplant are at a much higher risk for skin cancer? We sat down with experts to discuss how you can lower your risk.

In this episode we heard from:

Dr. Cerrene Giordano is a dermatologist and Mohs Micrographic surgeon at Roswell Park Comprehensive Cancer Center in Buffalo, New York. She specializes in treating skin cancers, particularly in patients who are high risk such as thos...

Potassium is an essential mineral, but it is important to make sure you have the right amount. Tune in and hear from experts on how high potassium (hyperkalemia) can impact health and it’s risk in people with advanced chronic kidney disease.

In this episode we heard from: 

Briana Douglas is currently a Peer Mentor for the National Kidney Foundation. At 17 yrs old, she was diagnosed with Lupus Nephritis. She was then...

What does feeling truly seen and supported mean in your health care? For many LGBTQIA+ people with kidney disease, the answer isn’t simple. Jess Walters is a mixed-media artist, Board Certified Patient Advocate, and independent scholar living with a kidney transplant. Marissa is the Patient Programs Director at the National Kidney Foundation (NKF) and a social worker working to make kidney care more inclusive. Toget...

In a time when the hope of surviving kidney failure was rare, one family refused to give up. Pulitzer prize winning journalist, Maura Casey recounts her sister's fight for life in the 1960s and the legacy of hope it left behind. 

In today's episode we heard from:

Maura Casey grew up in an Irish-American family in Buffalo, New York, the youngest of six children. For more than 30 years, Casey was an opinion writer for three New ...