Pulmonary Fibrosis Podcast
What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, ‘live’ march 4th wherever you tune in! Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information!
Episodes
How does ILD typically present in women vs. men? Any noticeable difference in symptoms?
Are there types of ILD that are more common in women than in men?
These are the questions we discuss in this episode of the 'Pulmonary Fibrosis' podcast! Jen Wescoe and Dr. Rachel Criner of Temple Lung Center discuss women and ILD, the mental health of women battling ILD, and great resources you can use to join clinical trials to help beat this ...
The timeline of diagnosis, to possible transplant recipient -- to post-transplant can feel like a whirlwind for patients and caregivers.
Marion Marin, a lung transplant recipient, joins the show to discuss how that process went for her! She discusses advocating for yourself, waiting for 'the call' -- and the importance of the community around you when physically and emotionally dealing with a diagnosis!
What is the difference between Palliative Care & Hospice, and why important to discern the difference?!
Dr. Kathleen Lindell of the Medical University of South Carolina joins the show to discuss why Palliative Care can be such an important piece of both the patient and caregivers role in the ILD journey.
It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF S...
Everyone can have a role in the Pulmonary Fibrosis community! Whether that's as a patient, a caregiver and beyond -- information is key to helping tackle all things PF.
This episode, we're joined by John Marshall and Dr. Ilene Hollin of Temple University Lung Center to discuss the importance of patient engaged research, and how you can be involved in the research as well!! We'll learn more about PCORI and Convene-PF, and how you ca...
2024 was an AMAZING year for the 'Pulmonary Fibrosis' podcast!
We have been downloaded in 74 countries around the world, and can't wait to continue to explore all avenues that connect the ILD community!
Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss some of the tremendous moments of 2024, and what's in store for 2025!
Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylva...
How is the Veteran community impacted by Interstitial Lung Disease? What are some helpful resources to help Veterans navigate ILD?
Dr. Dean (Trey) Kellogg of UT Health San Antonio joins the show to discuss Veterans and ILD!
It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.
Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIPFsupportnetwork.org!
See om...
What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease?
Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there!
It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.
Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at P...
How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease?
How does the family dynamic help in managing this part of one diagnosis?
Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.
Brought to you the W...
What is Pulmonary rehab? How has rehab changed thanks to the virtual world?
This episode, we're joined by David Junga, RRT, PAS with Pulmonary Rehabilitation Associates, LLC to discuss the great benefits of virtual rehab!
It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIPFsupportnetwork.org!
See omnystudio.com/listener for pr...
What defines a "rural" area? What step has to been taken to assess rural healthcare & ILD needs?
Find out in a new episode of the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
This episode, we're joined by Dr. Teja Kulkarni of UAB and Dr. Jessica Shore of the Pulmonary Fibrosis Foundation to discuss the impact on patients living in rural areas...
What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey?
Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast!
Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIP...
What is Patient Engaged Research? What is PCORI?
Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF.
It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIPFsuppo...
Delightful.
That is the best way to describe our guest for this episode -- Dr. Aberdeen Allen!
Dean, as he likes to be called, discusses the experience living with ILD, and what Patient Voice is, and means to him!
It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIPFsupportnetwork.org!
See omnystudio.com/listener for privacy...
What are ILD guidelines? How are they developed, and what major role do patients play in the process?
Dr. Sindhu Johnson of the University of Toronto joins Crockett to discuss the ins-and-outs of ILD guidelines in this episode of the Pulmonary Fibrosis podcast!
Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!
See omnystudio.com/listener fo...
What a year it was!
Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss the wonderful and enlightening moments of 2023, and what exciting things are in store for 2024 in the Pulmonary Fibrosis podcast!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit paipfsupportnetwork.org!
See omnystudio.com/listener for privacy information.
What role does nutrition play for patients and caregivers battling ILD?
Dr. Gautam George of Jefferson Health joins Crockett to discuss how one can prioritize their nutrition on a daily basis, specific foods that can help, and the role calories play!
It's the 'Pulmonary Fibrosis' podcast! Brought to by you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org...
In what ways have Veterans been affected by Interstitial Lung Diseases? What resources do Veterans have, and how can the VA help?
We're joined by Dr. Mary Porteous, the Director of the Interstitial Lung Disease and Sarcoidosis Program at the Corporal Michael J. Crescenz VA Medical Center and Penn Medicine, to discuss Veterans living with ILD in the 'Pulmonary Fibrosis' podcast!
Brought to you by the Wescoe Foundation for Pulmonary ...
What are telomeres? What role do they play in understanding IPF?
We discuss these questions and more in a new episode of the 'Pulmonary Fibrosis' podcast!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Dr. Jonathan Alder and Dr. Daniel Kass of UPMC join Crockett to discuss current research on telomeres, and the impact it is having on the IPF community!
What is the role of a Genetic Counselor?!
Why is a genetic counselor needed for a person living with IPF?
We find out in this month's episode of the PULMONARY FIBROSIS podcast! We're joined by Janet Talbert of Vanderbilt University Medical Center to discuss the important roles of Genetic Counselors!
Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsuppor...
What is UNOS? And what role do they play for a patient waiting for a lung transplant?
Dr. Marie Budev of the Cleveland Clinic, and the OPTN Lung Transplantation Committee Chair joins the PULMONARY FIBROSIS podcast to discuss these questions and more!
Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsupportnetwork.org!!
Find the PULMONARY FIBROSIS podcast wh...
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