Pulmonary Fibrosis Podcast
What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, ‘live’ march 4th wherever you tune in! Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information!
Episodes
What is Patient Engaged Research? What is PCORI?
Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF.
It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIPFsu...
Delightful.
That is the best way to describe our guest for this episode -- Dr. Aberdeen Allen!
Dean, as he likes to be called, discusses the experience living with ILD, and what Patient Voice is, and means to him!
It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIPFsupportnetwork.org!
See omnystudio.com/listener for pri...
What are ILD guidelines? How are they developed, and what major role do patients play in the process?
Dr. Sindhu Johnson of the University of Toronto joins Crockett to discuss the ins-and-outs of ILD guidelines in this episode of the Pulmonary Fibrosis podcast!
Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!
See omnystudio.com/listener ...
What a year it was!
Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss the wonderful and enlightening moments of 2023, and what exciting things are in store for 2024 in the Pulmonary Fibrosis podcast!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit paipfsupportnetwork.org!
See omnystudio.com/listener for privacy information.
What role does nutrition play for patients and caregivers battling ILD?
Dr. Gautam George of Jefferson Health joins Crockett to discuss how one can prioritize their nutrition on a daily basis, specific foods that can help, and the role calories play!
It's the 'Pulmonary Fibrosis' podcast! Brought to by you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.o...
In what ways have Veterans been affected by Interstitial Lung Diseases? What resources do Veterans have, and how can the VA help?
We're joined by Dr. Mary Porteous, the Director of the Interstitial Lung Disease and Sarcoidosis Program at the Corporal Michael J. Crescenz VA Medical Center and Penn Medicine, to discuss Veterans living with ILD in the 'Pulmonary Fibrosis' podcast!
Brought to you by the Wescoe Foundation for Pulmonar...
What are telomeres? What role do they play in understanding IPF?
We discuss these questions and more in a new episode of the 'Pulmonary Fibrosis' podcast!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Dr. Jonathan Alder and Dr. Daniel Kass of UPMC join Crockett to discuss current research on telomeres, and the impact it is having on the IPF community!
What is the role of a Genetic Counselor?!
Why is a genetic counselor needed for a person living with IPF?
We find out in this month's episode of the PULMONARY FIBROSIS podcast! We're joined by Janet Talbert of Vanderbilt University Medical Center to discuss the important roles of Genetic Counselors!
Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsup...
What is UNOS? And what role do they play for a patient waiting for a lung transplant?
Dr. Marie Budev of the Cleveland Clinic, and the OPTN Lung Transplantation Committee Chair joins the PULMONARY FIBROSIS podcast to discuss these questions and more!
Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsupportnetwork.org!!
Find the PULMONARY FIBROSIS podcast...
We're discussing the effects of AIR POLLUTION on this episode of the PULMONARY FIBROSIS podcast!
What research is being done to help us understand the effects of pollution on the general public and people living with Pulmonary Fibrosis and Interstitial Lung Disease?
Dr. Gillian Goobie of the University of British Columbia joins host Kevin Crockett to discuss her studies in air pollution, and how the Pulmonary Fibrosis community c...
What role does sleep play for patients when dealing with ILD?
What are some ways to help manage sleep with ILD?
Dr. Maria Vega-Sanchez of Temple Lung Center joins Kevin Crockett to discuss the correlation between sleep and lung diseases!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIPFSUPPORTNETWORK.org!
See omnystudio.com/listener for privacy informa...
What is a Pulmonary Function Testing?
Why is this information important for patients and caregivers living with lung diseases?
We discuss these questions and more, with Dr. Kartik Shenoy of Temple Lung Center, in this episode of the PULMONARY FIBROSIS podcast!!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!Learn more at PAIPFSUPPORTNETWORK.org!!
One thing we've talked about quite a bit in this podcast is how far things have come in battling IPF in just the last two decades. Our guest this episode is Eamonn Costello, the Co-Founder and CEO, patientMpower, who discusses the key advances in TECHNOLOGY that are making a BIG TIME impact!In what ways can we share the benefits of technology with patient care? What does he envision as ...
What is Pulmonary Rehabilitation? What are the benefits?
Crockett is joined by Lorri Snyder and Emily Pettit of Wellspan York to discuss these questions and more in this episode of the PULMONARY FIBROSIS podcast!
Brought to you by the PAIPF Support Network – visit paIPFsupportnetwork.org!
And by the Wescoe Foundation for Pulmonary Fibrosis! Find the Pulmponary Fibrosis podcast wherever you get your podcasts!
What a year it has been for the PULMONARY FIBROSIS PODCAST!!
Jen Wescoe, of the Wescoe Foundation for Pulmonary Fibrosis, joins Crockett and reflects on the year that was, the AMAZING steps the PAIPF Community has taken in recent years, and what we can look forward to in 2023!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!!
What is an acute exacerbation? Are there different types of exacerbation related to Idiopathic Pulmonary Fibrosis?
Dr. Nathaniel Marchetti of Temple Lung Center joins host Kevin Crockett to discuss acute exacerbation and more!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!!
Find the 'PULMONARY FIBROSIS' podcast on Google, Spotify, Apple podcasts - wherever you get your...
There really isn't an easy way to have the conversation...
Families facing IPF, or any terminal diseases, ultimately need to start talking about the issues that may arise with the end of a loved one's life.
Colleen Pellegrino, a Licensed Clinical Social Worker, joins Crockett to disucss the way to begin those conversations, the timing of them, and there may even be a lighthearted pop-culture reference or two in there to break the...
It takes a village when someone is battling a disease like Pulmonary Fibrosis.
The patient, the Medical Teams -- and of course -- the caretakers!
Karen Carns joins Crockett to discuss the role of the caretaker, reflecting on the path she has taken with her husband Jim.
It's the ‘PULMONARY FIBROSIS’ PODCAST!!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at P...
What role does a Rheumatologist play in the diagnosis and theraputic process when it comes to Interstitial Lung Diseases?
Crockett is joined by Dr. Giorgos Loizidis - a Rheumatologist from Jefferson Health, in a NEW episode of the ‘PULMONARY FIBROSIS’ PODCAST!!
Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!
Learn more at PAIPFSUPPORTNETWORK.org!!
Are you or someone you know living with Idiopathic Pulmonary Fibrosis?! We have got a GREAT episode this time around with excellent information on the patient and caregiver experience from a patient living with IPF.
Jim Carns joins Crockett to tell us about the patient experience of living with IPF, and about lung transplants.
It's the 'PULMONARY FIBROSIS' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis, a...
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