The Health Advocates

In this episode of The Health Advocates, we break down one of the most pivotal and controversial ACIP meetings in recent history. The CDC’s vaccine advisory committee voted to roll back the universal hepatitis B birth dose — a policy that has protected newborns from chronic liver disease for more than three decades. We explain what ACIP decided, why the changes were not based on new scientific evidence, and how misinfor...

How can lawmakers rebuild public trust in health, and make prevention a shared priority?

In this episode of The Health Advocates, Steven Newmark speaks with Texas State Representative Nicole Collier, a leading voice on health equity, women’s health, and preventive care. From her work on the Select Committee on Preventable Diseases and Women’s Health to her advocacy for fair access to vaccines, Rep. Collier brings...

In this special Thanksgiving episode, Steven helps our community prepare for the conversations that matter most. Every year, GHLF shares its “Turkey Day Talking Points” to support people living with chronic illness or who are immunocompromised as they navigate discussions about vaccines with family and friends.

This episode breaks down simple, compassionate ways to explain why vaccines are so important, and why p...

In this episode of The Health Advocates, host Steven Newmark breaks down what the recent federal government shutdown means for health care access and vulnerable patients. Then, he’s joined by Mahsa Pazokifard, a passionate patient advocate living with IgG4-related disease (IgG4-RD), a rare and often misunderstood autoimmune condition. Mahsa opens up about the challenges of getting diagnosed, how the disease has impacted her l...

Pandemics aren’t only about pathogens, they’re about people, politics, and the deep inequities in our health systems. In this episode of The Health Advocates, Steven Newmark speaks with Dr. Tyler Evans, an infectious disease and public health leader whose career has spanned the front lines of global outbreaks from Ebola to COVID-19. As the former Chief Medical Officer for New York City and co-founder of the Wellness and...

Open enrollment for 2026 is underway — and for millions of Americans managing chronic or rare diseases, understanding your health insurance options is essential. In this episode of The Health Advocates, Steven Newmark breaks down what open enrollment is, what’s new this year, and how to navigate changes in your plan.

Drawing from Aimed Alliance’s 2026 Open Enrollment guide, Steven explains key terms like dedu...

In this special episode of The Health Advocates, Steven Newmark speaks with Kathi Lopez, who shares her journey of being diagnosed with Giant Cell Arteritis (GCA). Kathi talks about the challenges of getting a proper diagnosis, navigating treatment, and managing life with a rare autoimmune condition. She shares how staying informed, connected, and engaged in advocacy has helped her take control of her care, and how she now helps ot...

The 2025 Nobel Prize in Physiology or Medicine recognized groundbreaking advances in understanding immune regulation — but what do they mean for people living with autoimmune disease? In this episode, Dr. Shilpa Venkatachalam, Chief Patient-Centered Research and Ethical Oversight Officer at GHLF, joins Steven to explore how our immune system knows when to act — and when to stop. Shilpa explains the importance of these d...

What happens to America’s health when Washington grinds to a halt? In this episode of The Health Advocates, we break down the latest federal government shutdown and what it means for public health agencies across the country. We explain what a shutdown actually is, drawing from past shutdowns over the last 30 years, and then dive into the immediate and long-term impacts on the CDC, FDA, NIH, and other agencies that millions o...

In this episode of The Health Advocates, Steven Newmark sits down with Richard (RJ) Kedziora, co-founder of Estenda Solutions, to explore the intersection of technology, data, and patient advocacy. With decades of experience in healthcare technology, RJ shares how he and his team design digital tools that help patients take control of their health while supporting providers and payers alike. They also discuss patient engagement, ac...

In this episode of The Health Advocates, we unpack a turbulent week in public health. The CDC’s Vaccine Advisory Committee (ACIP), now reshaped under Health Secretary Robert F. Kennedy Jr., met to debate changes to the COVID-19, MMRV, and Hepatitis B vaccine recommendations. Despite heated rhetoric and process irregularities, the committee ultimately kept broad access to COVID-19 vaccines — a short-term win for patients...

This fall’s Covid-19 vaccine rollout is more confusing than ever. The FDA has narrowed eligibility to older adults and people with high-risk conditions, while major medical societies are urging broader access — and insurance companies are waiting for new guidance from ACIP, the advisory committee that’s been reshaped by RFK Jr.

In this episode of The Health Advocates, host Steven Newmark explains who qualifies as ...

In this special episode of The Health Advocates, we take a closer look at Polymyalgia Rheumatica (PMR), a condition that affects tens of thousands of older adults each year in the U.S. but is often misunderstood. Host Steven Newmark is joined by GHLF’s Angela Degrassi, patient advocate Eileen Salsman, and two leading experts — Dr. Leonard Calabrese and Dr. Jeffrey Curtis — to unpack what PMR is, how it impacts dai...

CDC Director Susan Monarez has been fired after less than one month on the job, sparking a wave of resignations by senior leaders and raising alarms about the politicization of public health. In this episode of The Health Advocates, host Steven Newmark unpacks what happened, why it matters, and what the loss of experienced leadership means for patients and communities. From vaccines to emergency preparedness, the future of the CDC ...

A leaked draft of the Trump administration’s Make Our Children Healthy Again plan reveals a strategy to improve kids’ health that’s far less sweeping than many expected. Instead of bold action on processed foods and pesticides, the draft emphasizes “awareness” campaigns and industry-friendly guidelines, while reopening old battles over vaccines, fluoride, and even WiFi.

In this episode of The He...

In this episode, Steven is joined by Dr. Zameer Pirani, an interventional pain specialist and co-founder of the Afiya Spine and Pain Institute in Canada. Dr. Pirani shares his path to pain medicine, from early training in Ireland to his experiences with anesthesia and chronic pain fellowships. He discusses how the opioid crisis, gaps in the health care system, and the stigma surrounding pain patients shaped his career and passion f...

In this episode, host Steven Newmark breaks down four critical public health stories making headlines:

• Senators Angus King and Elizabeth Warren introduce a resolution to defend the U.S. Preventive Services Task Force amid reports that RFK Jr. may fire its members.
• What’s really at stake if the Task Force is dismantled—and how evidence-based guidelines are already saving lives, from colon cancer screenings to heart ...

In this episode, Steven Newmark, Chief of Policy at GHLF, is joined by Clayton Ruley, Director of Strategic Initiatives, Mission Advancement & Impact at the Community Liver Alliance. Clayton shares his decades-long journey from frontline harm reduction work to shaping national health policy. Together, they discuss the need for compassion in healthcare, the importance of patient-centered policymaking, and the urgent challenges f...

What exactly are reconciliation and rescission—and why do they matter for your health? In this episode, Steven Newmark, Chief Policy Officer at GHLF, demystifies two powerful — and often misunderstood — budget tools: reconciliation and rescission. What do they mean? How do they bypass the normal budget process? And why do they matter for healthcare, public programs, and patients?

Steven breaks down the differences...