The Joel Nelson Podcast

The Joel Nelson Podcast

Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality. Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) in front of a LIVE audience on our YouTube Channel here: https://youtube.com/joelvsarthritis.

Episodes

April 26, 2024 48 mins

Please note that this show contains the following TRIGGER WARNINGS: Suicide, Grief, and Depression - please consider this when deciding how and where you listen.

In this show, my long-time friend, Ben Veal, founder and director of Second Mountain Comms, shares his personal experiences with anxiety and depression and how he managed his mental health during the COVID-19 pandemic. We'll talk about the recent loss of his father and the...

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On World Parkinson's Day, join us for a poignant and inspiring conversation with Dr. George Ackerman, a passionate advocate for Parkinson's disease and dementia awareness. Driven by the memory of his mother, Sharon, who bravely battled the disease, Dr. Ackerman has dedicated his life to raising awareness, furthering research, and offering hope to millions impacted by Parkinson's.

Hear Dr. Ackerman share his mother's journey with Pa...

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Osteoarthritis (OA) doesn't discriminate.

It can affect people of all ages, including young adults and even children. In this episode, we talk to Rebecca Kudyk, who was diagnosed with severe Osteoarthritis at the age of 25.

Rebecca shares her story of living with OA and how she has managed to not only maintain a high-profile job and young family, but thrive.

In this episode, you will learn: 

  • How OA can affect people of all ages
  • ...
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In this episode, we ask what role gender plays in delays to diagnosis.

We are incredibly fortunate to be joined by Professor Yeliz Prior, Professor of Clinical Rehabilitation at the University of Salford, who lives with axial spondyloarthritis (axSpA) and osteoarthritis.

Alongside exploring her personal lived experience journey and the great work she does as a prominent figure in the Rheumatology community, we discuss diagnostic de...

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Ahead of Rare Disease Day, we welcome Rachel Rimmer and Mark Telkman from Rare Autoinflammatory Conditions Community UK (RACC-UK) to illuminate the often-overlooked world of these chronic illnesses and how they differ from autoimmune diseases.

RACC-UK is a UK-based charity supporting individuals living with rare autoinflammatory conditions, their families, and carers. They work tirelessly to improve their lives through information,...

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We are incredibly fortunate to be joined by not only Ass. Prof. Dr. Rachel Sommer, Head of People-Centered Health Care Research and Psychodermatology at University Medical Center Hamburg-Eppendorf, but a surprise guest in leading Dermatologist Prof. Dr. Matthias Augustin, Director of the Institute for Health Services Research in Dermatology and Nursing of the same institution who discuss the vitally important work they both do in p...

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In this final episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, 'Joel vs Arthritis' Twitch community member Lauren Gibbons shares her story of living with Ulcerative Colitis and how she believes childhood trauma and stress contributed to the development of her autoimmune condition. 

She discusses her journey to diagnosis, her decision to undergo total colectomy surgery, and...

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In this second episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview Matthew Gibbons, who lives with Crohn's Disease. 

Crohn’s disease is a type of inflammatory bowel disease that causes digestive tract inflammation.

Joel and Matthew talk about a variety of topics related to Crohn’s disease, including:

- The challenges of living with Crohn’s disease, such as managi...

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In this first episode of a three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview community member Kevin Gibbons, who has relapsing-remitting multiple sclerosis. 

We discuss Kevin's experience with the condition, including his diagnosis, symptoms, and how he manages his life with MS. We also talk about the importance of patient advocacy, peer support and how sharing stories can he...

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Petra Phoenix has been living with chronic pain for many years. She has seen many doctors, but she has never been given a specific diagnosis. This has made it difficult for her to access the help she needs.

In this show, Petra shares her story of navigating chronic pain without a label. She talks about the challenges she has faced in accessing support, the resources she has found, and how she manages her pain.

Petra's story is a re...

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Transverse myelitis (TM) is a neurological disorder characterised by spinal cord inflammation. This inflammation disrupts the normal transmission of nerve signals between the brain and the rest of the body, leading to various and sometimes life-threatening symptoms.

Joining us to share their harrowing experience of Transverse Myelitis is someone who needs little introduction to regulars of our YouTube Channel; Chiara last joined us...

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December 18, 2023 2 mins

Our podcast turns three years old, and with it comes a makeover!

In this short update, Joel explains the reason for the change and the exciting things to come.

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter: https://twitter.com/joelvsarthritis Links: https://linktr.ee/Joelvsarthritis

Watch The Chronic Pain Club Talk Show and these interviews LIVE on You...

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Dr Eleanor Chatburn, Clinical Psychologist, Lecturer, and Ambassador for The British Skin Foundation, joins us at the end of a marathon stream on World Psoriasis Day to discuss the mental health impact and burden of living with a chronic skin condition.

We discuss ways of coping, alternative therapies, such as pain management and talking therapies, and the stigma people with skin conditions face.

Plus, we get valuable insight into ...

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Eczema and psoriasis are common skin conditions that can cause significant discomfort and disruption to everyday life. This talk show provides practical tips and advice on managing these conditions and living more comfortably from various lived experience perspectives.

We talk to experts in the field of skincare, as well as people who have lived with eczema and psoriasis, to get their insights and experiences. We also cover topics ...

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September 30, 2023 61 mins

On this episode of the podcast, we are joined by somebody who needs little introduction in the UK access and disability space.

Broadcaster, Journalist, Musician and disability advocate Mik Scarlet joins us to talk about his lifelong relationship with pain, the darker side of living with pain and how he uses humour to cope, the amazing work he does for access, disability and inclusion and touches upon his incredible and varied caree...

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In this episode, we are joined by the wonderful Ian Taverner, aka Mr Cookfulness.

Ian becomes an instant favourite with our live audience as we talk about adjusting to chronic pain, the mental health impact pain can have and how Ian turned to cooking to cope with his change in circumstances. Following Ian’s incredible journey from the grief of pain and the impact on his family to how he now owns the stage at events like Naidex, thi...

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Tracy lived with Antiphospholipid Syndrome for 17 Years, from her first symptom to diagnosis, resulting in internal damage. 

Over the years, Tracy learned to use art to process and began painting her condition as she saw and experienced it.

Now a patient advocate for Antiphospholipid Syndrome, Invisible Disability and Chronic Pain, Tracy joins us on the Chronic Pain Club Talk Show to talk about this often-overlooked autoimmune cond...

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On this episode, we are joined by Katy Pieris to talk about parenting with Rheumatoid Arthritis, the importance of exercise, why she volunteers and hear her arthritis story.

This felt more like two friends chatting at the bus stop than a video call between two people for the first time, and I really hope that mutual respect, candidness and relaxed conversation comes across in the recording. :)

Follow our GUEST:  Instagram: https://...

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We are joined by special guest Russ Cowper - Psoriatic Arthritis Patient Advocate, Charity Trustee and Poet - to hear why they advocate and how writing poetry helps them live with a chronic condition. This one, and the live poetry readings, proved very popular on our YouTube channel at the time of recording.

Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook), or for full links, click here.

Watch The Chronic Pain Club and th...

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On this episode of The Joel vs Arthritis Podcast, we are joined by inspirational special guest Sukhjeen Kaur. We talk about her path to equality and inclusion advocacy, her founding of Chronically Brown and why Intersectionality is so important.

Follow our GUEST: 

Instagram: @chronicallybrown Facebook: chronicallybrown Twitter: @chronicbrown Website: chronicallybrown.com

Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook)

Wa...

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