Tale of Two Zebras

Both Amberlyn and Ann have some experience living in areas with severe weather and they've both gone through prepping education. While Amberlyn is much more formal with military training, Ann didn't do too shabby using using resources found at the library. 
Now is a great time to be talking to your providers about getting a few extra days worth of medications in case of an emergency. Don't forget to have your sho...

Yes, we're a few days late, but we discussed some "Good News" that was shared on Rare Disease Day, February 29th. We'd love to hear what you think.
We also got a new mascot and are in the process of naming them. (We are all inclusive so our mascot uses they/them pronouns.) Listen in to find out who the mascot could possibly be. Big surprise: it's NOT A ZEBRA!

We're on YouTube too: https:/...

Ann has experience having a service dog and Amberlyn wants to know more so why not have the discussion on the podcast, right?
You may notice the new name: Tale of Two Zebras. Amberlyn aka Mrs. Labeezy and Ann aka Elder Zebra are making this thing official so you'll be noticing our efforts to make this brainchild a reality.  Like so many things involving chronic illness, it will take baby steps and time to fully reach 100% ...

Thank you to our special guest this episode. We had a lot of fun talking about POTS, living with chronic illness, and sharing stories. There were a lot of resources mentioned and I will be adding them to the episode description asap. 
TBH: It was much harder editing the recording than I expected. It is one thing to live with health challenges, it is another to listen to others validate the experience. Listening back to the reco...

Sleep is suppose to be restorative but for EDS Zebras, it is often every but restorative. Who knew there was an illness where sleeping can actually be painful? Pillows quickly become friends. There are also higher risks of serious issues and it is strongly recommended that sleep troubles be discussed with  medical professionals.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy&a...

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us. With it being the month of February and Valentines Day in the week, Mrs. Lazbeezy and Ann decided to discuss friendships and the challenges presented by being a spoon.

Here's a link to the reel that talked about 8 minute friends: https://www.instagram...

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us.
Our main topic of discussion this week is mobility aids. It's a hot topic and often a rough one with generational challenges of who, when, & why people should use them.
Trigger Warning: we do talk about depression and mention suicidal ideation alon...

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us.

The episode is a bit random and is a great example of our general randomness dealing with our chronic illness. I had never heard of the Ladle Theory so join in Amberlyn teaching me neat things. 

Please visit Mrs. Labeezy's Amazon Link to see our Zebra ...

Welcome Mrs. Labeezy and the New Year. Had some technical difficulties but we should be good to go both here and on YouTube. Mrs. Labeezy covers the Beighton Scoring System found on the EDS Society website here. We cover some other Zebra basics and have fun relating with our unique zebra experiences.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves inclu...

To learn more about the origins of the opioid crisis, check out HBO- MAX: The Crime of the Century.
You can learn more about Brent David Slone and his wife's fight for justice at https://youarewithinthenorms.com/2022/03/26/they-killed-my-husband-brent-david-slone-2016-cdc-opioid-guidelines%EF%BF%BC/
If you want to read about the Elliots' tragic demise, visit https://www.cato.org/commentary/after-crackdown-pain-cli...

Mrs. Labeezy and Ann discuss clothing options that have worked to support the bendy zebra bodies. Links to come so check back.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&la...

I am so excited to have Mrs. Labeezy back on the show.  I will add links soon so please stop back by if you're looking for those. You can also find Mrs. Labeezy on the clock app.
Here is Mrs. Labeezy's "Must Haves" on her Amazon storefront. Check it out:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_A0TB8S5PEQ474SPJKQMH

We're on YouTube too:...

It can be a real challenge to stay warm for many who struggle with chronic illnesses and pain. I hope some of the ideas are helpful and would love to hear your best tips and trick to staying warm.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?re...

It's the most challenging time of the year. I share some of my tips and tricks for the season and I share some brutal truths in my life right now.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQ...

I am so excited to have Mrs. Labeezy on the podcast this week. We have big plans to continue working together in the new year. 

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&l...

Dr. Erin Nance has completed a series for the month of October where each day she covers a diagnosis that disproportionately affects women and is often missed or misdiagnosed as something else.
On day 21, Dr. Nance covered MCAS - Mast Cell Activation Syndrome and mentioned its nasty sidekicks it is often with; Ehlers-Danlos Syndrome and POTS/Dsyautonomia.
You can find more information about MCAS at GARD - Genetic and Rare D...

Depression, I believe, is an unavoidable state for people with chronic illness and pain. It may not visit often or stick around long, but preparing for isn't a bad idea. Keep track of what works for you, note what works for others, and grow your toolbox. 

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:

There's a lot on my plate right now and things are stacking so I've been seeking ways to mitigate the heavy load when letting it go isn't an option.
I address self-care and the challenges learning to love yourself can present if there's some conditioning to battle. Sarah Jarvis covers the Backdraft Effect in this article.
Then I go into a discussion of a new trend called Glimmers. They are the opposite o...

Y'all, I have so many thoughts on this subject. I literally recorded a full episode every day this week. I did research and wanted to offer something that would be helpful. In the end, the thing I find most helpful is the reason I started this podcast - knowing I'm not alone and spreading love.
I know I sound rough and it's appropriate for the week that included two er visits, one complete with an ambulance ride,...