In this second part of episode 3 talking Dementia Podcasters Heckle and Jeckle expand on their personal experiences living with Early Onset Dementia and provide some fascinating insights, both professionally and personally for the GPs. Laugh, cry and learn from these wonderful ladies as they share their stories and lived experience with us and understand the importance of person centered care for people living with dementia.
SHOW NOTES:
Book: My Name is Phoebe Nanna by Jenni Lawson (Author), Karyn Lendich (Illustrator)
Dementia is a family disease. "My Name is Phoebe Nanna" is written for families to begin a discussion with grandchildren about the onset of dementia within their beloved grandparent. Although much will change over time, the loving connection to each other remains. Discussions that open questions with grandchildren about dementia helps families stay united throughout the change process - Available from Amazon books
Dementia Alliance International https://www.dementiaallianceinternational.org/
Dementia Australia
Providing support, information and services for people living with dementia, carers, family and health professionals
National Dementia Helpline – 1800100500
https://www.dementia.org.au/
Dementia Support Australia (DSA)
Dementia Support Australia (DSA) provides the Dementia Behaviour Management Advisory Service (DBMAS) and Severe Behaviour Response Teams (SBRT) nationwide. Dementia Support Australia offers a free national service operating 24/7 365 days a year.
24 hour Helpline 18000699799
https://www.dementia.com.au/
Carers Australia
Carers Australia is the national peak body representing Australia’s unpaid carers, advocating on their behalf to influence policies and services at a national level. It works collaboratively with partners and its member organisations, the Network of state and territory Carers Associations, to deliver a range of essential national carer services.
Phone 1800242636
https://www.carersaustralia.com.au/
RACGP Silver Book
Medical care of older persons in residential aged care facilities (Silver Book) aims to provide GPs and other health professionals including residential aged care nurses, with a resource for delivering quality health care in residential aged care facilities. https://www.racgp.org.au/clinical-resources/clinical-guidelines/ key-racgp-guidelines/view-all-racgp-guidelines/silver-book
RACGP Red Book - Guidelines for preventative activities in general practice - Dementia
https://www.racgp.org.au/clinical-resources/clinical-guidelines/ key-racgp-guidelines/view-all-racgp-guidelines/red-book/ preventive-activities-in-older-age/dementia
My Aged Care - dementia resources
https://www.myagedcare.gov.au/getting-started/health- conditions/dementia
Cognitive Screening Tests Standardised Mini-Mental State Examination (SMMSE)
Frequently used in general practice as included in most popular medical software programs. MMSE score require for prescribing dementia medications on PBS
https://www.ihpa.gov.au/sites/default/files/publications/ smmse-tool-v2.pdf - https://www.ihpa.gov.au/sites/g/files/ .css-j9qmi7{display:-webkit-box;display:-webkit-flex;display:-ms-flexbox;display:flex;-webkit-flex-direction:row;-ms-flex-direction:row;flex-direction:row;font-weight:700;margin-bottom:1rem;margin-top:2.8rem;width:100%;-webkit-box-pack:start;-ms-flex-pack:start;-webkit-justify-content:start;justify-content:start;padding-left:5rem;}@media only screen and (max-width: 599px){.css-j9qmi7{padding-left:0;-webkit-box-pack:center;-ms-flex-pack:center;-webkit-justify-content:center;justify-content:center;}}.css-j9qmi7 svg{fill:#27292D;}.css-j9qmi7 .eagfbvw0{-webkit-align-items:center;-webkit-box-align:center;-ms-flex-align:center;align-items:center;color:#27292D;}
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